The 2017 Genetic Haemochromatosis Patient Survey and Resulting Report

The 2017 Genetic Haemochromatosis Patient Survey

The report was published on 31 October 2018 and can be downloaded in PDF format free of charge here along with supporting documents.

A high-quality A4 glossy perfect bound print version of the report can be ordered at https://www.haemochromatosis.org.uk/purchases


PDF Downloads (free)

  1. Original 2017 survey questionnaire, analysis and full report:
    LIVING WITH THE IMPACT OF IRON OVERLOAD
  2. Strike While the Iron is Not: Calls To Action Oct 2018 (compressed 1MB)
  3. Strike While the Iron is Not: Calls To Action Oct 2018 (full resolution** 33MB)

** Strike While the Iron is Not contains numerous large images


LIVING WITH THE IMPACT OF IRON OVERLOAD: Report from a large survey of people with haemochromatosis was authored by The University of Surrey and published by Haemochromatosis UK, PO Box 6356, Rugby, CV21 9PA. Copyright 2018 Haemochromatosis UK.


Copyright license

Haemochromatosis UK grants to you a worldwide non-exclusive royalty-free revocable license to view this report on a computer or mobile device, copy and store the report, and print pages from the report for your use.

Haemochromatosis UK permits any user to read, download, copy, distribute, print, search, or link to the full texts of the report, crawl it for indexing, pass it as data to software, or use it for any other lawful purpose, without financial, legal, or technical barriers other than those inseparable from gaining access to the internet. The only constraint on reproduction and distribution, and the role for copyright in this context, is to give Haemochromatosis UK and the report authors control over the integrity of their work and the right to be properly acknowledged and cited.