The charity is managed by a Board of Trustees. The charity is also a company with the trustees as directors.
Trustees of the charity are all unpaid volunteers and are responsible under both charity and company law.
The board has appointed staff to administer the day to day operations of the charity.
The board will always include a majority who are directly affected by haemochromatosis, in order to ensure focus on patient benefit. All bring their own particular expertise and experience, in addition to which they are supported by a group of respected medical advisers.
Board of Directors (Board of Trustees)
Mr Neil McClements
Mrs Samantha Hobbs
Education Programme Manager
Mrs Vicki Lunn
Office & Membership Administrator
Clinical Advisory Panel (CAP)
Dr Susan Hancock
Professor Martin Johnson
Emeritus Professor of Nursing, University of Salford
Professor Edward (Ted) Fitzsimmons
Honorary Clinical Associate Professor, University of Glasgow Medical School
Dr Jeremy Shearman
Consultant Gastroenterologist, South Warwickshire NHS Foundation Trust
Professor David Melzer
Professor of Epidemiology and Public Health, University of Exeter
Dr Patrick Kiely
Consultant Rheumatologist, St George’s University Hospitals NHS Foundation Trust
Dr Bill Griffiths
FRCP, Consultant Hepatologist, Cambridge Universities Hospitals NHS Foundation Trust
Dr Roseanna Brady
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