Maidstone Meeting Brings Patients Together

About 60 patients gathered in Maidstone on Saturday (03 August 2019) for the latest quarterly Patient Information Day (PID) organised by Haemochromatosis UK. The group heard first from Consultant Gastroentrologist George Bird from Maidstone Hospital, who gave an excellent overview of GH, based around a fascinating case study – that of Ernest Hemmingway. Many of the points made by Dr (Read more…)

The Iron Games: Hurling Report

Oliver Connell beats the competition and takes home The Iron Cup in the hurling final of The Iron Games  The third round of The Iron Games saw 6 teams – Careys, ECL Civil Engineering, J.Coffey, Murphys, Oliver Connell and Toureen go head to head for the Iron Cup in hurling, which took place at McGovern Park, Ruislip on Saturday 27 (Read more…)

Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron. Researchers from Perspectum Diagnostics, together with the University of Westminster, University College London as well as Lund University in Sweden, were used MRI technology to quantify liver-iron content. The new LiverMultiScan technology allows this to occur in a non-invasive manner. This new (Read more…)

How Many Shopping Days ’til Christmas?

As the temperature rises, Haemochromatosis UK is already thinking ahead to cooler times and has launched the charity’s 2019 range of Christmas cards. The 3 designs are now available to order online, along with a triple pack option at a discounted price. All of the profits from the sale of cards is applied to the work of Haemochromatosis UK, supporting (Read more…)

GP Training Webinars Launched

Genetic haemochromatosis is the UK’s most common – yet under-diagnosed – genetic condition. A typical GP practice will have an average of 15 people affected by haemochromatosis on its list, possibly undiagnosed. Working in partnership with the Royal College of GPs, Haemochromatosis UK (HUK) has developed training resources & an eLearning module covering genetic haemochromatosis. To mark the launch of the Royal College of (Read more…)

Genetic Haemochromatosis Education Programme Launches

The Genetic Haemochromatosis Education Programme (GHEP) is a three year programme that aims to educate healthcare professionals about genetic haemochromatosis. It has been in the works for the past year, and due to funding from The Iron Games and The Shears Trust, it has recently been launched. The first step for Haemochromatosis UK (HUK) was hiring a GHEP Manager, who (Read more…)

Westminster Hall Debate on Genetic Haemochromatosis

HUK was delighted to see iron overload (genetic haemochromatosis) debated in parliament yesterday (03 July 2019) for a full hour, in the presence of health minister Mrs Seema Kennedy MP and led by Mark Pawsey MP, Chair of the All Party Parliamentary Group on Genetic Haemochromatosis. The debate was wide ranging, with MPs touching on symptoms, prevalence, penetrance, and on (Read more…)

Haemochromatosis to be debated at Westminster

Chair of the All Party Parliamentary Group for Genetic Haemochromatosis (APPGGH) Mark Pawsey MP has secured a one-hour Westminster Hall debate in parliament next week, in which he will raise issues around diagnosis and management of the condition. Other MPs will also be able to speak on the subject, which is relevant to all MPs because the prevalence of genetic (Read more…)

The Iron Games: Soccer Report

  The second round of The Iron Games saw 10 teams – nine of which were from Irish construction firms and one representing the charity Haemochromatosis UK (HUK) – compete for the Iron Cup in soccer. The 7-a-side tournament took place at Allianz Park (Saracens) in London on a beautiful summery evening. Once again there was plenty of passion on (Read more…)

Why Being a Haemochromatosis Patient Can Save Lives

The treatment for genetic haemochromatosis is a regular blood removal process called venesection. Whilst this may sound scary, it is the same process as a regular blood donation, except the blood is discarded. When patients find out that their blood is being discarded, the question that arises is – “I wish I could donate”. Donating blood is often something that (Read more…)