Diet and Iron Overload: New Guide Published

The Haemochromatosis Society, a national patient organisation dedicated to supporting and informing people affected by genetic iron overload disorder, has published a new guide to food and drink for patients. The 16 page booklet is being made freely available online and will also be available on request in printed format. Copies will be distributed to people who join the society and (Read More … )

Edinburgh to host patient information day.

Date 24th February Venue Radisson Blu hotel 80 High Street, The Royal Mile, Edinburgh EH1 1TH As part of The Haemochromatosis society’s ongoing core work to offer support to patients with haemochromatosis and keep them up to date with the latest information, we are running another in our series of patient information days (PID). The PID’s are a smaller scale (Read More … )

Survey Closes With Over 2,200 Responses

The Genetic Haemochromatosis Patient Survey 2017, a major project to collect and analyse data from patients, has just closed to new data with over 2,200 responses having been recorded. Over the next few weeks the survey data will now be downloaded, de-duplicated and encrypted, before being anonymised and encoded. The dataset will then be used over the next few months (Read More … )

Charity Accepts Round £1 Coins for Prize Draw Entries

Patient Organisation and charity The Haemochromatosis Society, which supports people affected by genetic iron overload, is accepting old round £1 coins and entering people who donate them into their annual prize draw. There are several prizes on offer, including a brand new HD TV set and a number of High Street shopping vouchers. People who find the old coins in (Read More … )

Our first patient information day in Northern Ireland was a great success.

The Northern Ireland Patient Information Day (PID) was a one-day event organised by the society to provide information to sufferers of haemochromatosis and their families. The PID attracted patients, family members, and others with an interest in the condition. It was an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet (Read More … )

The Haemochromatosis Society enters into talks with the Royal College of GPs to develop an online training resource.

We are very excited to announce that we have begun discussions with the Royal College of General Practitioners to develop an online training resource about haemochromatosis for GPs. As part of their ongoing training GP’s must earn CPD (continued professional development) points to continue practising. One way that GPs can earn CPD points is through online learning modules produced by (Read More … )

A new study into the effect of proton pump inhibitors (PPI) on Haemochromatosis patients has been published.

Proton pump inhibitors (PPIs) reduce the production of acid by blocking the enzyme in the wall of the stomach that produces it. They are commonly used to treat short term problems such as heartburn or ulcers. Proton pump inhibitors lower the concentration of vitamin C in gastric juice and work to reduce the absorption of non-haem iron. Iron in food (Read More … )

Society Training Material Secures Major Endorsement

Training material produced by The Haemochromatosis Society in partnership with Boots Pharmacies has now been fully endorsed by The Royal Pharmaceutical Society (RPS), certifying the training to be of high quality and at a CPD level suitable for pharmacists and pharmacy technicians. The literature was originally produced in late 2015 and amended/updated slightly in mid 2017. The RPS endorsement was confirmed (Read More … )

GH Challengers Complete Hadrian’s Wall Trail

A group of hardy trekkers have just completed a 5 day, 87 mile hike along the length of the iconic Hadrian’s Wall in the north of England to raise funds for The Haemochromatosis Society and raise awareness of GH. (Click on any image for full size version) The GH Challenge 2017 left Bowness-on-Solway on the west coast of Cumbria on Monday (Read More … )

International GH Meetings June 2017

Two important international meetings took place on the weekend of Sunday 25 June and Monday 26 June 2017, as the European Federation of Associations of Patients with Haemochromatosis (EFAPH) and the European Iron Club (EIC) gathered in Muenster, Germany. The Haemochromatosis Society was being represented at the meetings by scientific adviser Professor Rob Evans and our Chief Executive David Head, both of (Read More … )