The Iron Games: Soccer Report

  The second round of The Iron Games saw 10 teams – nine of which were from Irish construction firms and one representing the charity Haemochromatosis UK (HUK) – compete for the Iron Cup in soccer. The 7-a-side tournament took place at Allianz Park (Saracens) in London on a beautiful summery evening. Once again there was plenty of passion on (Read more…)

Why Being a Haemochromatosis Patient Can Save Lives

The treatment for genetic haemochromatosis is a regular blood removal process called venesection. Whilst this may sound scary, it is the same process as a regular blood donation, except the blood is discarded. When patients find out that their blood is being discarded, the question that arises is – “I wish I could donate”. Donating blood is often something that (Read more…)

World Haemochromatosis Week 2019

03-09 June was World Haemochromatosis Week (WHW) and so many of you got involved with awareness raising activities. This year’s campaign was focused on #TellTen, trying to get all patients, members and supporters to #TellTen other people about haemochromatosis. We’re were very pleased to see so many people talking about haemochromatosis. We saw this clearly on social media was where (Read more…)

Haemochromatosis UK Announces New Chief Executive

Earlier this year Haemochromatosis UK (HUK) announced plans to expand the senior management team at the charity by appointing a new Chief Executive and creating an Operations Executive role to be taken up by David Head, the existing Chief Executive. The trustees are delighted to confirm that this has been progressed exactly as planned and the selection process completed. (Read more…)

The Iron Games Returns for 2019. Gaelic Football Report

On Saturday 8 June, The Iron Games returned for 2019. The Iron Games are a four-part sporting tournament which see construction firms in the UK take part to raise awareness of iron overload, which is common among those of Irish descent. The games raise money for a 3 year Genetic Haemochromatosis Education programme, and have already brought in almost £200,000.  The (Read more…)

Haemochromatosis UK Chief Executive

Earlier this year Haemochromatosis UK announced plans to expand their senior management team by appointing a new Chief Executive and creating an Operations Executive role to be taken up by David Head, the existing Chief Executive. The trustees are delighted to confirm that the selection process is complete, with our new Chief Executive now joining us part-time in June and (Read more…)

GH to the Future

Saturday 13th April, Haemochromatosis UK (HUK) held their Annual Patients Conference in the city of Coventry. This year, HUK also organised a pre-conference dinner, which was hosted by the Lord Mayor of Coventry and haemochromatosis patient, Cllr John Blundell. As well as an amazing meal and evening entertainment, the dinner offered attendees the chance to speak to other haemochromatosis patients, (Read more…)

HUK Annual Report and Accounts Published

2018 has been a significant year for us at HUK in many ways. We exceeded not only our financial targets, but also our aspirational ones. Alongside delivering core services such as our trusted Patient Information Days, our helpline and our annual conference, we started to truly advocate for change when we launched the findings of our 2017 large-scale patient survey at the House of Commons. This led directly to a number of exciting initiatives, which could see significant improvements in the quality and consistency of treatment and care of GH patients across the UK. (Read more…)