Each year Genetic Disorders UK make their ‘Champion Of Hope’ awards to individuals who have recorded a lifetime of dedication to their organisation.
At an awards dinner in London on Friday (09 March) Howard was presented with the award alongside three other recipients, in front of an audience of 180 representatives from dozens of charities and other organisations working for patients with genetic disorders.
Howard said shortly afterwards that he was “very proud” to accept it, but added that “The award reflects the work of many deserving volunteers over the years, people like Bernard McGrath who led the North West group for many years before his untimely death a year or so ago.”
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Genetic Disorders UK
Genetic Disorders UK is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders.
While individual genetic disorders are rare, it is thought that there are currently more than 6,000 diagnosed disorders and new disorders are being identified every day. It is estimated that 1 in 25 children is affected by a genetic disorder. This means that in the UK, 30,000 babies and children are newly diagnosed each year and more than half a million children and adults are living with a genetic disorder.
GDUK’s mission is to be the leading source of information and support for both those affected by a genetic disorder, and the charities and patient groups that support them, by bringing together everyone’s combined experience in a place it can be shared.
Genetic Disorders UK also organises the annual Jeans for Genes Day fundraising event.