The Genetic Haemochromatosis Patients’ Conference 2016

The Genetic Haemochromatosis Patients’ Conference 2016 was held on 24 April 2016 in Manchester. The venue included a high quality lecture theatre and a foyer for lunch and coffee breaks allowing plenty of informal discussions amongst over 100 delegates. The conference followed the society’s AGM which took place earlier in the morning.

Speakers at the 2016 Conference

Delegates were addressed briefly by our Chair (Howard Don) and Chief Executive (David Head) who updated us on some of the society’s activities. We then heard from five eminent medical and scientific speakers on different aspects of GH and the management of the condition. This was followed by a 90 minute Q&A session,  giving the audience the chance to ask questions of all of our speakers. The Q&A is usually the most active part of our meetings and this was no different. Recordings are available at this link and our speakers were:

Dr David Das, a highly respected gastroenterologist recently retired from Stepping Hill Hospital in Stockport with a career-long interest in genetic haemochromatosis and in improving patient pathways.

Dr Edward (Ted) Fitzsimons, Honorary Clinical Associate Professor at the School of Medicine Department of Haematology, Gartnavel General Hospital in Glasgow. In 2015, with others, he published research in the Journal of Clinical Pathology entitled Improved detection of hereditary haemochromatosis.

Prof ShaletProf Stephen Shalet, Emeritus Professor of Endocrinology at Christie Hospital, Manchester and a Consultant Endocrinologist who has practiced in Manchester for over 25 years.

Dr Kathryn Robson, a geneticist at Oxford Universiy’s Weatherall Institute of Molecular Medicine. Dr Robson has published on the genetics of haemochromatosis and on the use of next generation sequencing to screen for 16 genes involved in the body’s iron cycle.

Dr Sherif Boulos, Clinical Research Manager at Resonance Health (RH), the company behind Ferriscan.  In his role with RH, Dr Boulos is responsible for establishing and overseeing clinical trials set up to test the benefits of non-invasive imaging of the liver.

Reviews of the 2016 Conference

“…I thought that Saturday went really well. Very informative, a good panel and excellent facilities.  Thank you for organising it all…”

“…congratulations on a most successful conference. The meeting was very well organised and enjoyed by all…”

“…I would like to say thank you very much to you and all the speakers and helpers for a very interesting Saturday afternoon. Also for the organising, and the effort that has been put in the event … keep your good work up and thanks again…”

“…just a quick note to thank you for todays conference – excellent speakers, very informative, and we came away with many questions answered (and many more raised!!)…”

“…congratulations to you on an excellent AGM & Conference – one of the best I have attended and well organised … The speakers were excellent and very informative and Manchester did you proud … Well done to you and looking forward to the next one…”

“…just to say how wonderful the conference was on Sat! … all the speakers were really good, and very approachable and open. A big Thank You to your team for putting it together and making it such a success! The society will go from strength to strength…”

An Annual Event

Details of the next annual Genetic Haemochromatosis Patients’ Conference will be found at http://haemochromatosis.org.uk/support/conference/