The Haemochromatosis Society, a national patient organisation dedicated to supporting and informing people affected by genetic iron overload disorder, has published a new guide to food and drink for patients.
The 16 page booklet is being made freely available online and will also be available on request in printed format. Copies will be distributed to people who join the society and included in packs sent out to hospitals and clinics working with genetic haemochromatosis (GH) patients.
David Head, Chief Executive at the society, said “This booklet is genuinely ‘by demand’; I can’t think of a topic that raises more questions on our helpline, at our events, or in any conversation with someone newly diagnosed with GH than diet. There are lots of myths to dispel as well as some straightforward guidance to get across, and this is an ideal way to do it. We intend to make the booklet available free of charge as a PDF on our website and we want it to be distributed as widely as possible.”
The society’s new booklet is based on presentations made by NHS dietitians at patient information events held in Cardiff, Glasgow, Belfast and Northampton, as well as advice from Dr Dave Das, a Consultant Gastroenterologist recently retired from Stepping Hill Hospital in Stockport.
The booklet can be downloaded from the new link on any page of the society’s website as well as by clicking on the icon below.