This page is a diary of national events organised by Haemochromatosis UK (HUK). Please visit from time to time to keep up to date.

Upcoming Events

Date: Saturday 4th April 2020
Event: The Genetic Haemochromatosis Annual Patients’ Conference (incorporating HUK AGM 2020)
Location: Hotel Mercure, Manchester Piccadilly

Our annual conference is coming to the North West in 2020. We will be meeting at the prestigious Hotel Mercure Manchester Piccadilly.


Book tickets here :

Draft Programme (subject to change)

9:00am Registration, tea and coffee

9:30am Welcome and Introduction
Neil McClements (Chief Executive, Haemochromatosis UK) will introduce our theme for the day and set the scene for an outstanding programme of presentations.

9.35am Panel discussion : “What is Genetic Haemochromatosis?”
In the light of recent medical discoveries, Dr Jeremy Shearman, Chair of our Clinical Advisory Panel and Professor Martin Johnson (Clinical Advisor) will chair this lively panel discussion with the trustees of Haemochromatosis UK. There will be a chance to meet your trustees, learn more about their background and quiz them on what GH means to them.

10:15am Presentation : “Haemochromatosis in all its guises”
Dr Steven Masson (Consultant Gastroenterologist, Freeman Hospital, Newcastle) is a highly regarded gastroenterologist, with a long-standing interest in genetic haemochromatosis. An experienced medical researcher as well as practising clinician, Dr Masson will explore some of the less common aspects of genetic haemochromatosis.

11.00am Presentation : “Haemochromatosis : new findings from UK Biobank participants”
Dr Janice Atkins (Research Fellow, Epidemiology & Public Health Group, University of Exeter Medical School) is an epidemiologist specialising in genetic haemochromatosis. Her team’s ground-breaking research over the past 18 months has been instrumental in improving our understanding of the prevalence of the condition. In this session, she will be revealing some of the latest findings from the UK Biobank, a £200 million genetic databank, for living well with haemochromatosis.

11:45 Refreshment break with tea, coffee and biscuits

12:05 Presentation : “Getting our voice heard in Westminster. How HUK members can shape the debate!”
Joshua Kaile is a Westminster insider, having worked for many years in advocacy and lobbying for a range of causes. Most recently, he has been working for David Lammy MP as parliamentary assistant. In this session, Joshua will reveal some of the surprisingly effective techniques for effective lobbying and advocacy of policymakers.

12:30 Presentation : “Engaging With the NHS If Things Go Wrong”
Tim Spring is a partner and Head of Healthcare at Moore Blatch. He helps clients navigate complex claims including those who have suffered serious physical or emotional trauma arising from medical negligence. Tim spent nearly a decade leading a team of lawyers investigating major clinical mishaps for the NHS. He was course director for the UK’s first university-accredited Diploma in Clinical Risk Management for healthcare professionals. He is a Royal Society of Medicine Patient Safety Section Council member and has a particular interest in ensuring that lessons are learned from individual patient experience within the NHS so that patient care is improved for all.

13:00 Lunch, and opportunity to talk to other attendees, our speakers, HUK trustees and our staff

13:55 Please reconvene for the afternoon session

14:00 Presentation : “Get involved : how you can help others through an advanced medical imaging clinical trial”
In this session, Dr John Connell (Senior Scientist, Perspectum Diagnostics) will demonstrate some of the advances in genetic haemochromatosis diagnostics. Haemochromatosis UK is a founding member of the National Consortium of Intelligent Medical Imaging (NCIMI), a £12 million InnovateUK funded initiative to improve healthcare through advanced medical imaging. John will explain how HUK members can get involved in the NCIMI clinical trials to improve our understanding of how best to apply advanced magnetic imaging to diagnose haemochromatosis early and painlessly, at scale.

14:45 Presentation : “What’s an expert patient, anyway?”
HUK member Phil Coathup shares his experiences of our expert patient programme which seeks to raise awareness of the symptoms and diagnosis of GH. Learn how you can get involved in helping our hard-working GPs help others affected by GH.

15:00 Presentation : “Improving genetic reports for people with haemochromatosis”

Earlier this year, Haemochromatosis UK and a team of researchers at University of Cambridge started a collaboration to improve the reporting of genetic results to people affected by haemochromatosis. Dr. Gabriel Recchia (Research Associate, Winton Centre for Risk and Evidence Communication, University of Cambridge) will share some of the early insights from this work and explain how members can get involved in this exciting patient-focussed research project.

15:30 Chair’s Closing Remarks
Ms Corrina Towers, Chair of HUK’s Board of Trustees provides a summary of the day’s events and shares some of the charity’s plans for 2020/2021.

15:45 Refreshment break with tea, coffee and biscuits

16:00 Departure of non-members

16:05 Annual General Meeting of Haemochromatosis UK members (separate agenda available to members)
All members of Haemochromatosis UK are invited to attend the charity’s Annual General Meeting which will include an overview of activities in 2019 and a review of the charity’s financial statements.

17:00 Close of event

Date Saturday 1st February 2020
Event: Belfast Patient Information Day
Location: Holiday Inn Express,106 University St, Belfast BT7 1HP

Join us at our Belfast Patient Information Day, for people affected by genetric haemochromatosis, their families and supporters. These events are perennially popular – a chance to meet other people with haemochromatosis and learn more about living well with haemochromatosis. Our speakers include clinical experts and people with extensive lived-experience of haemochromatosis.

During this day-long event we will be covering :

  • What is genetic haemochromatosis?
  • How is haemchromatosis treated?
  • The genetics of haemochromatosis : information & reassurance for families
  • Diet & well-being : how to eat & live well with haemochromatosis
  • Practical tips & tricks for successful treatment & living well with haemchromatosis
  • Details of how you can get involved in Northern Ireland with our NI Support Group

Our speakers include :

  • Dr Johnny Cash (Consultant Gastroenterologist, Belfast City Hospital Liver Unit)
  • Corrina Towers (Chair Board of Trustees, Haemochromatosis UK)
  • Sam Hobbs (Education Programe Manager, Haemochromatosis UK)
  • Neil McClements (CEO, Haemochromatosis UK)
  • Neil Irwin (NI Support Group Lead)

These events are very popular and receive consistently good feedback from attendees. Lunch included.

Discounted early bird tickets are available until 20th December 2019.

Date: Saturday 4th April 2020
Event: The Genetic Haemochromatosis Annual Patients’ Conference (incorporating HUK AGM 2020)
Location: Manchester

Full details will be published here as they become available. For more information contact the

Past Events (Previous 12 months)

Date: Saturday 21st September 2019
Event: Shaping The Future of Haemochromatosis UK in Northern Ireland
Location: Stranmillis College, Belfast (2.30pm – 4.30pm)

Did you know that genetic haemochromatosis affects 1 in 113 people in Northern Ireland? Please join us at this event to help us shape our plans for supporting people affected by genetic haemochromatosis, their families, friends & colleagues. It’s an opportunity to meet other people affected by the condition informally over tea/coffee. We’ll be providing an update on recent charity initiatives and a chance to meet our new CEO, Neil McClements. Apply for free tickets here.

Date: Sunday 22nd September 2019
Event: Shaping The Future of Haemochromatosis UK in Northern Ireland
Location: Bishop’s Gate Hotel, Derry (12 Noon – 2pm)

Estimates suggest 1 in 5 people in Ireland are carriers for haemochromatosis. Please join us at this event to help us shape our plans for supporting people affected by genetic haemochromatosis in the North West. We’ll be providing an update on recent charity initiatives. We welcome your thoughts & ideas to improve healthcare locally for people affected by GH. Apply for free tickets here.

Date: Sunday 20th October 2019
Event: Great South Run
Location: Southsea, Portsmouth
Distance: 10 Miles

We have 10 places available in the Great South Run, part of the Great North Run family this promises to be a fantastic event. With a registration fee on £25 and a low fundraising target of £150 this is a great way to support Haemochromatosis UK. Please email if you are interested in taking part.


Date: Saturday 3rd August 2019
Event: Maidstone Patient Information Day
Location: Mercure Maidstone Great Danes Hotel, Ashford Road, Maidstone, ME17 1RE

Patient Information Days are a great source of information, relevant to both newly diagnosed patients and those who have been living with haemochromatosis for a while.

Date: Saturday 27th July 
Event: The Iron Games: Hurling 
Location: GAA Stadium, Ruislip, HA4 6QX

The third event of The Iron Games took place at the GAA Stadium in Ruislip. The Iron Games is a four-part sporting tournament raising money for Haemochromatosis UK and specifically funding a three year Genetic Haemochromatosis Education Programme.

Date: Friday 14th June 2019
Event: The Iron Games: Soccer
Location: Allianz Park, Saracens ground, Hendon, London: NW4 1RL

The last event of The Iron Games was soccer, and took place at Allianz Park in London. The Iron Games is a four-part sporting tournament raising money for Haemochromatosis UK and specifically funding a three year Genetic Haemochromatosis Education Programme.

Date: Sunday 09 June 2019.
Event: 2019 Great North Swim. 1-mile open water swim
Location: Windermere, Lake District 

This is the first time #TeamIronOverload took part in a swimming event. Despite some shaky weather, the swim went ahead, and the lovely Saran Jones from Rowlinsons Solicitors took part in the swim. A huge thanks to Saran!

Date: Saturday 8th June 2019
Event: The Iron Games: Gaelic Football
Location: GAA Sports and Social Club, West End Road, Ruislip, London, HA4 6QX

On Saturday 8 June 2018, The Iron Games returned for its first of the four games. The Iron Games is a four-part sporting tournament raising money for Haemochromatosis UK and specifically funding a three year Genetic Haemochromatosis Education Programme.

Date: Monday 3rd – Friday 7th June 2019.
Event: World Haemochromatosis Week 
Location: Worldwide

For World Haemochromatosis Week this year, HUK ran online campaigns and encouraged members and supporters to raise awareness of haemochromatosis in their own areas.

Date: Saturday 27 April 2019. 10:30am
Event: Haemochromatosis NI Spring Meeting
Location: Europa Hotel, Great Victoria Street, Belfast, BT2 7AP

This event was an opportunity to hear from Dr Johnny Cash, who is a Consultant Gastroenterologist & Hepatologist at the Regional Liver Unit, Royal Victoria Hospital. Attendees discussed how the Northern Ireland support group might develop over the next year and the meeting further offered time for those diagnosed with Haemochromatosis to meet with other patients and family to discuss the condition and its impact on our lives.

Date: Friday 12th April 2019
Event: Venesection Study Day 2019
Location: Coventry Novotel. Wilsons Ln, Coventry CV6 6HL

The Best of Best Practice in Venesection (6 hours CPD*). CPD accredited study day for venesection staff and team leaders. Haemochromatosis UK offered a second study day for venesection nurses, clinical nurse specialists, clinic leaders, healthcare assistants and others involved in the treatment and care of haemochromatosis patients. The day built on our award winning work to improve venesection practice and provide much needed CPD for venesection teams, and our highly popular and successful 2018 study day.

More information

Date: Saturday 13th April 2019
Event: Haemochromatosis UK Annual Conference 2019 
Location: Coventry Novotel. Wilsons Ln, Coventry CV6 6HL

Our annual conference was held in Coventry and was bigger and better than ever. The event had high quality speakers, a variety of sessions, and full of important information about haemochromatosis and . We also added the option of a conference dinner for the first time (Friday 12th). The three course meal was hosted by the Chief Exec of HUK and featured special guests including the Lord Mayor of Coventry and the key conference speakers. The dinner was an unrivaled opportunity to get to know other members and have interesting discussions with haemochromatosis experts.

More Information

Date: Wednesday 17th April 2019
Event: The Lord Mayor of Coventry’s Easter Charity Concert 2019
Location: St Mary’s Guildhall, Coventry

Many Haemochromatosis UK (HUK) supporters may be aware that The Lord Mayor of Coventry Cllr John Blundell, who was diagnosed with haemochromatosis last year, chose HUK as one of his charities of the year. The Lord Mayor of Coventry is hosted a fantastic Easter concert event raising funds for Haemochromatosis UK.

The performances took place in the beautiful medieval St Mary’s Guildhall in the city of Coventry, which is also the City of Culture 2021. The event featured the Silver Lining Barbershop Chorus, and was supported by young vocalists from Rugby Area Talent Trust.

This was a unique event as it brought together 45 members of the city’s best female choral group and some amazing young voices from Rugby, where HUK is based. Haemochromatosis UK was very pleased to have the support of The Lord Mayor and the event was definitely enjoyable and one for all music enthusiasts to attend.

Date: Saturday 17th November 2018
Event: Bristol Patient information Day
Location: Aztec Hotel. Aztec W, Almondsbury, Bristol BS32 4TS

A patient information day featuring medical speakers, updates on the activities of Haemochromatosis UK, and an opportunity to meet and share experiences with other people affected by GH. More information is here >> Report from the day

Date: Friday 12th October 2018
Event: Iron Games- Golf day
Location: Aldenham Golf Club, Church Lane, Radlett, Watford WD25 8NN

The final part of the Iron Games was golf. The day was hugely successful, and ended with a celebratory dinner. The Iron Games has raised £110,000 in 2018, contributing towards a Genetic Haemochromatosis Education Project. See also Media Release: The Iron Games – Golf 

Date : Saturday 22nd September 2018
Event: The Iron Games : Hurling
Location: Greenford, Berkeley Avenue UB6 0NZ

Part 3 of the inaugural Iron Games was Irish Hurling. The Iron Games is a fundraising event bringing together 11 teams from major construction companies to compete for the four Iron Cups and raising funds for Haemochromatosis UK. The Iron Games are sponsored by Toureen Group who also entered as one of the competing teams. Each entering team made a donation to support the work of Haemochromatosis UK. See also Media Release: The Iron Games – Hurling