An audience of some 80 people, 3 excellent speakers. an ideal venue and dozens of questions meant that The Haemochromatosis Society’s Patient Information Day (PID) at The Futures Inn in Cardiff on 07 January was a great success. There was a real “buzz” in the room as many of the delegates had not had the opportunity before to talk to and share their experiences with other GH patients.
The PID includes presentations from a haematologist, a physiotherapist and two dietitians with plenty of time for the inevitable questions.
Society Trustee Lisa Flude, who is also the organisations main link for Wales, introduced and led the day, stating that “This Patient Information Day has been organised because we have not run an event in Wales before, but we know there is a demand for good information here.” The event was also attended by Chair Howard Don and Chief Executive David Head.
The first speaker, addressing the subject The Role of your Haematologist was Dr Helen Jackson, a Consultant Haematologist at the Aneurin Bevan University Health Board based at Royal Gwent Hospital. Dr Jackson (pictured) gave a superb and clear presentation and then took plenty of questions from the audience.
Dr Jackson’s presentation can be heard by clicking on the audio stream below. The recording includes both the presentation and the Q&A session and is 63 minutes in total.
After a short break with a lot of chat over tea, coffee and welshcakes, delegates heard presentations on two further topics.
Physiotherapy and Dietetics
Firstly David Easton, a Chartered Physiotherapist, spoke about holistic approaches to health and pain management, particularly in respect of joint problems experienced by haemochromatotics.
Subsequently Helen Long and Emily Capener, both dietitians based at University Hospital of Wales, Cardiff, presented on iron absorption, diet, and alcohol.
All three speakers then took a series of questions from the audience.
The afternoon presentations and Q&A session are again available to listen to by clicking on the audio stream below. In addition, the presentation from Helen and Emily is available to download as a series of Powerpoint slides.
>> Haemochromatosis and Diet (Powerpoint presentation)
GH Support in Wales
In a final short session Lisa invited discussion about the future for meetings and a support group based in Wales. The discussion included the need for a social group, the value of medical speakers, location of meetings and distances in rural Wales, and the support available from the UK national society for any group that was to form.
A number of volunteers have stepped forward with a view to taking this further and any activites or plans that emerge will be publicised on this website and on The Haemochromatosis Society’s social media streams.