Haemochromatosis UK Raises Awareness at St. Patrick’s Day Parade

Haemochromatosis UK (HUK) staff and volunteers took to London on Sunday 17th March 2019 for the St. Patrick’s Day Parade dressed in #TeamIronOverload t-shirts and red wigs.

HUK also raised awareness with a float in the parade as well as a stand at Trafalgar Square. The float and the stand was kindly supported by Toureen Group.

It was a bustling affair was filled with thousands of visitors, and the team had lots of people asking questions about haemochromatosis.

Genetic haemochromatosis may affect 1 in 200 people in the UK population, and it is particularly prevalent in Irish families. As many as 1 in 8 Irish people may be a carrier (see Glossary). This made it crucial for HUK to have a presence at the St. Patrick’s Day Parade to raise awareness about haemochromatosis.

Debs Knight, Events Coordinator at HUK said, “It was a great opportunity to reach thousands of people we normally wouldn’t have access to. We are grateful for the support of the volunteers that came out for the parade and we hope to build on it next year”.

Katharine Hough, Trustee at HUK said, “It was such a great experience being involved in the St Patricks Day Parade this year. We got our name out to 1000’s and 1000’s of people, many of whom I am sure have not heard of Haemochromatosis, it was a great profile raiser for us. Mid walking through the parade a woman from the crowd told me she had no idea we had a society as her husband has just been diagnosed and I told her to head to our website and social media for more information, and I am sure there were many more stories like this from the day! I can only imagine how great next year’s involvement will be!”


Notes

Toureen Group also supported HUK through The Iron Games 2018 events which helped raise funds for a GH Education Programme.