World Haemochromatosis Week, an international collaboration bringing together a dozen national patient bodies, is to be launched in Liverpool by Lord Mayor Cllr Christine Banks.
#WHW2018 runs from 02 June to 10 June.
Haemochromatosis UK is launching the event at a Patient Information Day for people affected by the condition, which is to be held at The Novotel Conference Centre in the city.
Haemochromatosis is a genetic condition which causes the body to absorb too much iron from food, such that it builds up to toxic and even lethal levels. “Iron overload” is particularly prevalent in people of Irish heritage, including amongst the large Irish diaspora in Liverpool and the North West of England, where Haemochromatosis UK has its highest concentration of members.
After the launch and event opening by The Lord Mayor, patients will hear from specialists in the treatment and management of their condition, and have the opportunity to take part in a “Question Time” session.
David Head, Chief Executive at Haemochromatosis UK, said “We are proud to be launching WHW 2018 in Liverpool because we have strong links with the region, and because the number of people affected in families with Irish heritage is particularly high. We are also very proud that The Lord Mayor is to launch World Haemochromatosis Week and meet patients and experts at the start of the event.”
Haemochromatosis, or iron overload disorder, can lead to chronic fatigue, joint disease, liver failure, heart problems, mental health issues, diabetes, sexual health problems and more. The condition is often undiagnosed or diagnosed after organ damage has occurred, and yet if identified early enough it can be cheaply and easily treated. World Haemochromatosis Week is intended to make healthcare professionals and the public more aware of the condition and the early symptoms.
Notes for editors
Haemochromatosis is one of the most common genetic conditions in people of northern Europe. It is also one of the least heard of. Public information about iron overload is at www.ironoverload.org.uk. Information for reporters is at http://haemochromatosis.org.uk/awareness/media/
Your photographer or reporter is welcome at the event. The Lord Mayor will be present from 09:30 to 10:30 and this will include photo opportunities (full robe).
For more information about haemochromatosis, quotes, or images please contact Chief Executive David Head on 03030 401101, 07720 444084 or at firstname.lastname@example.org.