Northern Ireland Patient Information Day, Belfast, Tuesday 10 October 2017

The Northern Ireland Patient Information Day (PID) is a one-day event organised by the society to provide information to suffers of haemochromatosis and their families. The PID is for patients, family members, and others with an interest in the condition. This is an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet (Read More … )

Trustee Recruitment at The Haemochromatosis Society

THS is actively seeking new trustees to join the current board following the resignation of long standing trustees Janet Fernau and David Widden at our AGM last month. In particular, new trustees with skills and experience in fundraising, dealing with regulatory/governance issues, and media/communications are needed. Chairman Howard Don said “We are keen to expand the board and to take (Read More … )

Events Boost for The Haemochromatosis Society

The Haemochromatosis Society has appointed a part time Events Coordinator to help build our events programme. Debs Knight will be working on fundraising events and our programme of patient information and educational days. Debs joined the team in Rugby last week, though many of our members would have met her at our main conference early in April, which she attended (Read More … )

Team Iron Overload Nail The London Marathon

The Haemochromatosis Society’s 5 star Virgin Money London Marathon (VLM) runners all competed the gruelling 26 mile course yesterday (Sunday 23 April 2017) and were able to celebrate great personal achievements as well as fundraising and awareness raising success. For the second year running our first runner home was Thomas Caulfield. Thomas came in at 3 hours 14 minutes, just (Read More … )

Patients’ 2017 Conference “A great success”

The Genetic Haemochromatosis Patients’ Conference 2017, which was held in Birmingham earlier this month, has been hailed as a great success. The event brought together about 150 delegates and was the largest ever gathering of GH patients in the UK. A series of superb speakers addressed delegates and answered questions, and the excellent venue and catering meant that people were able (Read More … )

Team Iron Overload Gear Up For 26 Mile London Challenge

Five runners are taking part in The Virgin London Marathon later this month, raising funds for the charity and also raising awareness of haemochromatosis amongst their families, friends, and other supporters. This is the second year that Team Iron Overload has taken part in the country’s largest mass participation sporting event, and one of the world’s most successful charity fundraising events. (Read More … )

Doctors of the Future Given Insight into Iron Overload

On 31 March 2017 The Haemochromatosis Society ran a scientific and medical conference for healthcare professionals. Included in the audience were several guest delegates from Handsworth Grammar School in Birmingham – sixth form students with an interest in biology and aspirations to go on to university and study medicine. David Head, Chief Executive at the society, said “The students were (Read More … )

Live Link to Conference for Intrepid Traveller

At the GH Patients’ Conference on 01 April Trustee Lisa Flude joined the event live from the first day of her 1,000 mile walk raising funds for The Haemochromatosis Society. Please donate to support Lisa at our secure site >> https://cafdonate.cafonline.org/6347

Founder and Secretary Step Down After Long Service

At the society’s AGM on 01 April long standing trustee and secretary David Widden, and founder trustee Janet Fernau MBE, chose to step down from the board and not seek re-election. Janet in particular is well known to many of the society’s members, having created the charity in 1990 and served as director ever since. She was recognised for her (Read More … )

Lisa Launches Long Long Hike for THS

Trustee and GH patient Lisa Flude starts “Lisa and Meg’s Big Tour” this coming weekend, setting off on a hike expected to cover 1,000 miles and raise several thousand pounds for three charities close to her heart – including The Haemochromatosis Society. Lisa will be accompanied by her dog Meg. She has been busy this week packing up the van (Read More … )