Welsh GH Social and Support Group

Following a Patient Information Day in Cardiff in January 2017, a group of our Welsh members, led by Trustee Lisa Flude from Cardigan, have formed the Welsh GH Social and Support Group. The new group will be organising its first meeting in the summer of 2017, and will also be setting up a dedicated social media (Facebook) page to allow Welsh members to (Read More … )

GH Patient Conference Programme Unveiled

The Haemochromatosis Society has announced details of the programme for the 2017 GH Patient Conference which takes place on Saturday 01 April in central Birmingham. This year sees the society’s formal AGM moved to the latter part of the day, in order to accommodate a keynote speaker from Rennes, France, in the morning. Eminent Professor of Hepatology Prof Pierre Brissot (pictured) (Read More … )

Society Appoints New Treasurer Trustee

The Haemochromatosis Society has appointed member Roger Keyte as a new trustee and as treasurer of the charity. The appointment comes after Kit Farrow stood down as trustee and acting treasurer in 2016. Roger has been involved with the UK society since 2014. He is affected by haemochromatosis himself, and is also an experienced businessman, accountant and charity worker. He (Read More … )

Society Joins “Work For Good” Making Company Giving Simpler

The Haemochromatosis Society has subscribed to new commercial / company giving facilitators Work For Good (WFG). Many companies, especially small to medium businesses, find it difficult or bureaucratic to give to charities that they may wish to support. ‘Work for Good’ is a new digital platform which overcomes this challenge, as it enable businesses to make donations easily and efficiently (Read More … )

Lisa and Meg’s Big Tour: Trustee Walks 1,000 Miles For THS

The Haemochromatosis Society’s trustee Lisa Flude is embarking on a massive 1,000 mile walk, along with her dog Meg, to explore the midlands and north of the UK and to raise funds for the society, Air Ambulance charities, and The Dogs’ Trust. Lisa will be leaving from her home in Cardigan in West Wales on 01 April 2017 and walking to Skye via North (Read More … )

The Haemochromatosis Society is Recruiting

As part of a carefully managed programme of growth and increasing influence, the society is recruiting a part time Events Coordinator to work from its office in Rugby, Warwickshire. David Head, Chief Executive at the charity, said “It’s really exciting that the charity’s activity levels and project plans are such that we need to take on another member of staff. (Read More … )

Conference: New Understanding Of Genetic Haemochromatosis

The Haemochromatosis Society is delighted to announce a specialist one-day scientific/medical CPD accredited conference exploring and debating new understandings of the pathology, diagnosis and management of genetic haemochromatosis. This event is supported by Resonance Health. This important event, the first for many years in the UK focusing on genetic haemochromatosis, will encompass: The role of transferrin saturation as a diagnostic and monitoring (Read More … )

Buzz Generated at GH Patient Information Day, Cardiff

An audience of some 80 people, 3 excellent speakers. an ideal venue and dozens of questions meant that The Haemochromatosis Society’s Patient Information Day (PID) at The Futures Inn in Cardiff on 07 January was a great success. There was a real “buzz” in the room as many of the delegates had not had the opportunity before to talk to (Read More … )

The Haemochromatosis Handbook 5th Edition

The GH “bible”, known more properly as The Haemochromatosis Handbook,  has been updated and refreshed, with the publication of the 5th Edition. The new edition of the handbook includes extensive new chapters on the genetics of haemochromatosis and the impact of iron overload on the heart. In addition, the two new chapters are being reproduced in the December issue of (Read More … )

Annual Conference Delegate Places Launched

Delegate places can now be advanced booked online for The Haemochromatosis Society Conference 2017. Each year the charity runs The Haemochromatosis Conference for patients and family members. This is an opportunity to hear from eminent medical speakers, take part in wide-ranging question-and-answer sessions, and to meet and talk to experts and other people who are affected by GH. “…congratulations to you (Read More … )