International GH Meetings June 2017

Two important international meetings took place on the weekend of Sunday 25 June and Monday 26 June 2017, as the European Federation of Associations of Patients with Haemochromatosis (EFAPH) and the European Iron Club (EIC) gathered in Muenster, Germany. The Haemochromatosis Society was being represented at the meetings by scientific adviser Professor Rob Evans and our Chief Executive David Head, both of (Read More … )

The Haemochromatosis Patient Survey 2017

The Haemochromatosis Society is pleased to announce the launch of a major survey of people diagnosed with genetic haemochromatosis and people who have been identified as having the faulty genes which can cause haemochromatosis (iron overload). Patients in the UK and beyond are invited to complete The Haemochromatosis Society 2017 Patient Survey, which is the first major project to collect data (Read More … )

Haemochromatosis Helpline Relaunched

A key UK source of patient information and advice has been relaunched by The Haemochromatosis Society. The Haemochromatosis Helpline ( 03030 401102 ) has seen investment in new internet telephony which allows a number of volunteers to provide the service from various locations around the country. In addition, a group of volunteer ‘helpliners’ have been through a training programme designed (Read More … )

Northern Ireland Patient Information Day, Belfast, Tuesday 10 October 2017

The Northern Ireland Patient Information Day (PID) is a one-day event organised by the society to provide information to suffers of haemochromatosis and their families. The PID is for patients, family members, and others with an interest in the condition. This is an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet (Read More … )

Trustee Recruitment at The Haemochromatosis Society

THS is actively seeking new trustees to join the current board following the resignation of long standing trustees Janet Fernau and David Widden at our AGM last month. In particular, new trustees with skills and experience in fundraising, dealing with regulatory/governance issues, and media/communications are needed. Chairman Howard Don said “We are keen to expand the board and to take (Read More … )

Events Boost for The Haemochromatosis Society

The Haemochromatosis Society has appointed a part time Events Coordinator to help build our events programme. Debs Knight will be working on fundraising events and our programme of patient information and educational days. Debs joined the team in Rugby last week, though many of our members would have met her at our main conference early in April, which she attended (Read More … )

Team Iron Overload Nail The London Marathon

The Haemochromatosis Society’s 5 star Virgin Money London Marathon (VLM) runners all competed the gruelling 26 mile course yesterday (Sunday 23 April 2017) and were able to celebrate great personal achievements as well as fundraising and awareness raising success. For the second year running our first runner home was Thomas Caulfield. Thomas came in at 3 hours 14 minutes, just (Read More … )

Patients’ 2017 Conference “A great success”

The Genetic Haemochromatosis Patients’ Conference 2017, which was held in Birmingham earlier this month, has been hailed as a great success. The event brought together about 150 delegates and was the largest ever gathering of GH patients in the UK. A series of superb speakers addressed delegates and answered questions, and the excellent venue and catering meant that people were able (Read More … )

Team Iron Overload Gear Up For 26 Mile London Challenge

Five runners are taking part in The Virgin London Marathon later this month, raising funds for the charity and also raising awareness of haemochromatosis amongst their families, friends, and other supporters. This is the second year that Team Iron Overload has taken part in the country’s largest mass participation sporting event, and one of the world’s most successful charity fundraising events. (Read More … )