Why do we organise the GH challenge?

The GH challenge is our biggest annual fundraising event. It runs every year in the summer, for 2018 a group of 50 GH patients and supporters will be hiking up and back down Snowdon. The group is made up of a wide range of people all with different abilities and reasons for joining in. We have families, experienced walkers, newly (Read more…)

Edinburgh to host patient information day

Date Saturday 15th September 2018 Venue Radisson Blu Hotel 80 High Street, The Royal Mile, Edinburgh EH1 1TH As part of Haemochromatosis UK’s ongoing core work to offer support to patients with haemochromatosis and keep them up to date with the latest information, we are running another patient information day (PID). PID’s are a smaller scale version of our main conference (Read more…)

New magazine feature- Ask Dr Das

Our member’s magazine ‘On the Level’ has had a bit of a face-lift in recent times, in much the same way as the charity as a whole is becoming more professional and influential our publications are becoming more in depth and exciting. Our aim eventually is to produce a ‘glossy mag’ and as part of the process of development, we (Read more…)

Patient Information Day – Liverpool

Our Patient Information Day (PID) in Liverpool was a huge success.  The North West of England has long been a particularly important area of the country for Haemochromatosis UK, we have a high proportion of membership there and a very active local support group running. We expected the information day to be extra special and we were not disappointed.  There (Read more…)

Haemochromatosis UK recieves lottery funding

Haemochromatosis UK has secured a National Lottery grant of over £6,000 to fund work around World Haemochromatosis Awareness Week next month, including for the creation of videos and temporary tattoos and the production of a range of material for widespread distribution. David Head, Chief Executive at the charity, welcomed the news. “I’m really pleased to be able to describe WHW2018 (Read more…)

‘Venesection Study: Sharing Best Practice’ event was a great success.

Haemochromatosis UK is proud to have organised the first venesection study day specifically focusing on Genetic Haemochromatosis.  As diagnosis improves the numbers of haemochromatosis patients being venesected rises year on year. As the scale of the condition becomes ever more apparent, so does the importance of work to ensure consistent and effective treatment. We know from our members that the (Read more…)