Help raise awareness of Haemochromatosis.

World Haemochromatosis Week (WHW) will run 4-10th June, we have lots of different events and activities going on through out the week. We’re encouraging everyone to do something  over WHW to promote understanding and knowledge of haemochromatosis, this could be anything from talking to one person about the disorder or using our Facebook frame right up to running an awareness event. (Read more…)

‘Venesection Study: Sharing Best Practice’ event was a great success.

Haemochromatosis UK is proud to have organised the first venesection study day specifically focusing on Genetic Haemochromatosis.  As diagnosis improves the numbers of haemochromatosis patients being venesected rises year on year. As the scale of the condition becomes ever more apparent, so does the importance of work to ensure consistent and effective treatment. We know from our members that the (Read more…)

Lord Mayor To Launch World Haemochromatosis Week

World Haemochromatosis Week, an international collaboration bringing together a dozen national patient bodies, is to be launched in Liverpool by Lord Mayor Cllr Christine Banks. #WHW2018 runs from 02 June to 10 June. Haemochromatosis UK is launching the event at a Patient Information Day for people affected by the condition, which is to be held at The Novotel Conference Centre (Read more…)

Conference 2018 Report

The Genetic Haemochromatosis Patients’ Conference was held on 14 April in Paddington, London. A report on the event is now available at this link: http://haemochromatosis.org.uk/conference-2018/. The 2019 conference will be held on Saturday 13 April 2019 in Coventry.

THS to adopt new working name

Chief Executive David Head has announced that over the course of coming weeks The Haemochromatosis Society will be adopting a new working name, Haemochromatosis UK. The move follows lengthy consideration by the board of many alternatives, culminating in the announcement which was made at the 2018 conference on 14 April. “Trustees have been modernising the organisation in many ways”, said (Read more…)

Notice to Members of Annual General Meeting

Published 27 Feb 2018 Updated 14 Mar 2018 As required under the society’s constitution, paid-up and life members of The Haemochromatosis Society are hereby advised that the society’s 2018 Annual General Meeting will be held as follows: Venue: The Novotel Hotel and Conference Centre, Paddington, W2 6BD Date: Saturday 14 April 2018 Time: 16:00 for 16:15; the meeting is expected to (Read more…)

Interim Chair Appointed at The Haemochromatosis Society

  Following the announcement last month that the current chair of the board of trustees of The Haemochromatosis Society, Howard Don, is to step down after completing his elected term, the charity is delighted to confirm that trustee Corrina Towers has been elected as the new chair on an interim basis. Corrina will take up the post on April 14 at (Read more…)

Chair recognised for “lifetime of service”

Chairman of The Haemochromatosis Society Howard Don has been recognised by Genetic Disorders UK for the 27 years he has supported, worked with and ultimately led the charity. Each year Genetic Disorders UK make their ‘Champion Of Hope’ awards to individuals who have recorded a lifetime of dedication to their organisation. At an awards dinner in London on Friday (09 (Read more…)