Trustees complete term of office

Trustees Nick Howes and Paul Hirons are both to step down from the board of The Haemochromatosis Society when they complete their elected terms of office in April. Trustees are generally appointed for three year cycles and can stand for re-election, however both have decided not to stand again at this year’s AGM on 14 April in London. Paul Hirons now (Read More … )

Notice to Members of Annual General Meeting

Published 27 Feb 2018 Updated 14 Mar 2018 As required under the society’s constitution, paid-up and life members of The Haemochromatosis Society are hereby advised that the society’s 2018 Annual General Meeting will be held as follows: Venue: The Novotel Hotel and Conference Centre, Paddington, W2 6BD Date: Saturday 14 April 2018 Time: 16:00 for 16:15; the meeting is expected to (Read More … )

Interim Chair Appointed at The Haemochromatosis Society

  Following the announcement last month that the current chair of the board of trustees of The Haemochromatosis Society, Howard Don, is to step down after completing his elected term, the charity is delighted to confirm that trustee Corrina Towers has been elected as the new chair on an interim basis. Corrina will take up the post on April 14 at (Read More … )

Chair recognised for “lifetime of service”

Chairman of The Haemochromatosis Society Howard Don has been recognised by Genetic Disorders UK for the 27 years he has supported, worked with and ultimately led the charity. Each year Genetic Disorders UK make their ‘Champion Of Hope’ awards to individuals who have recorded a lifetime of dedication to their organisation. At an awards dinner in London on Friday (09 (Read More … )

Patient Information Day- Liverpool

We are pleased to announce that we will be holding our next Patient Information Day (PID) in Liverpool. The PID will mark the launch of World Haemochromatosis Week (WHW) and promises to be a lively and informative day attracting 100+ haemochromatosis patients. DATE AND TIME Sat 2 June 2018 09:30 – 16:00 LOCATION Hotel Novotel Liverpool Centre 40 Hanover Street (Read More … )

BBC Covers Genetic Haemochromatosis Story

On Friday 02 March BBC Northern Ireland carried radio, TV, online and video coverage about genetic haemochromatosis and the prevalence of the so-called “Celtic Curse” across the island of Ireland. Although there are a couple of inaccuracies, notably reference to “a blood condition”, at The Haemochromatosis Society we are pleased to see mainstream media covering this major health issue. Television (Read More … )

Charity Chairman To Step Down in April

Howard Don, Chair of the board of trustees at The Haemochromatosis Society, is to step down at the charity’s AGM in April, having completed his full elected term of three years. Howard took on the Chairmanship when founder trustee Janet Fernau stood down in 2015, and has overseen the transformation of the charity from a small and entirely voluntary based (Read More … )

Zurich 2018: International Haemochromatosis Meetings: EFAPH

EFAPH is the European Federation of Associations of Patients with Haemochromatosis, an umbrella group bringing together like-minded patient organisations from across the continent. The EFAPH AGM 2018 was held on 11 February and was attended by three representatives from the UK: David Head, Chief Executive; Howard Don, Chairman; and Professor Rob Evans, Scientific Adviser. This is a summary of the (Read More … )

Haemochromatosis Update

Dr John Ryan, Consultant Hepatologist, OUH held a haemochromatosis update meeting on Wednesday 24th of January. The event was well attended and informative with talks from  Mr David Head, CEO, The Haemochromatosis Society.  Patient Support Update  Dr John Ryan, Consultant Hepatologist, OUH Clinical Update  Prof Hal Drakesmith, Assoc Prof of Immunology, Weatherall. Research update  Dr Patricia Bignell, (Read More … )