Haemochromatosis Update

Wednesday 24th January 2018 4-7pm  Lecture Theatre 1 Academic Centre John Radcliffe Hospital Dr John Ryan, Consultant Hepatologist, OUH is holding a haemochromatosis update meeting on Wednesday 24th of January. The event is free and open to all. If you would like to attend please RSVP to events@haemochromatosis.org.uk Speaking at the event are  Mr David Head, CEO, The Haemochromatosis (Read More … )

Edinburgh PID Postponed

For a number of reasons we have had to postpone our planned Patient Information Day (mini-conference) intended for 24 February, in Edinburgh. This event will instead go ahead on Saturday 15th September. A refund will be offered if you cannot attend the new date. Our apologies for any inconvenience caused. Please click here for more information

THS at Christmas

We wish all of our members, supporters, patients, volunteers, donors … in fact everyone … a very merry Christmas. The THS office will be closed until 02 January and we will not be responding to emails over the holiday period. However you can leave telephone messages on 03030 401101 and we will respond in the first week of the new (Read More … )

Diet and Iron Overload: New Guide Published

The Haemochromatosis Society, a national patient organisation dedicated to supporting and informing people affected by genetic iron overload disorder, has published a new guide to food and drink for patients. The 16 page booklet is being made freely available online and will also be available on request in printed format. Copies will be distributed to people who join the society and (Read More … )

Edinburgh to host patient information day

Date Saturday 15th September (Please note the revised (provisional) date) Venue Radisson Blu Hotel 80 High Street, The Royal Mile, Edinburgh EH1 1TH As part of The Haemochromatosis Society’s ongoing core work to offer support to patients with haemochromatosis and keep them up to date with the latest information, we are running another in our series of patient information days (PID). (Read More … )

Survey Closes With Over 2,200 Responses

The Genetic Haemochromatosis Patient Survey 2017, a major project to collect and analyse data from patients, has just closed to new data with over 2,200 responses having been recorded. Over the next few weeks the survey data will now be downloaded, de-duplicated and encrypted, before being anonymised and encoded. The dataset will then be used over the next few months (Read More … )

Charity Accepts Round £1 Coins for Prize Draw Entries

Patient Organisation and charity The Haemochromatosis Society, which supports people affected by genetic iron overload, is accepting old round £1 coins and entering people who donate them into their annual prize draw. There are several prizes on offer, including a brand new HD TV set and a number of High Street shopping vouchers. People who find the old coins in (Read More … )

Our first patient information day in Northern Ireland was a great success.

The Northern Ireland Patient Information Day (PID) was a one-day event organised by the society to provide information to sufferers of haemochromatosis and their families. The PID attracted patients, family members, and others with an interest in the condition. It was an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet (Read More … )

The Haemochromatosis Society enters into talks with the Royal College of GPs to develop an online training resource.

We are very excited to announce that we have begun discussions with the Royal College of General Practitioners to develop an online training resource about haemochromatosis for GPs. As part of their ongoing training GP’s must earn CPD (continued professional development) points to continue practising. One way that GPs can earn CPD points is through online learning modules produced by (Read More … )