The 2019 Great North Run

We have a limited number of Great North Run places and therefore we have set up an application process for this very popular event. Please complete and submit this form by 2nd January to apply for one of our charity places. We will let you know if you have been successful in securing a place by Monday 7th January. If (Read more…)

Bristol Patient Information Day Report

Date: Saturday 17th November 2018 Venue: Aztec Hotel. Aztec W, Almondsbury, Bristol BS32 4TS On Saturday 17 November 2018 Haemochromatosis UK (HUK) held a Patient Information Day (PID) which took place in Brstol, which had just over 50 attendees. PIDs are usually filled with talks featuring medical speakers, updates on the activities of Haemochromatosis UK and are an opportunity to meet and share (Read more…)

Volunteers raise £3000 for Haemochromatosis UK

Media Release 16 Nov 2018 October and November have been busy months for Haemochromatosis UK with the launch of the Iron Overload Report and the recently published BBC article about haemochromatosis. All of this work is only possible because of HUK members and fundraisers. The past few months have also been busy for HUK fundraising volunteers, who have in total (Read more…)

Living With the Impact of Iron Overload: a Summary

Media release 7 November 2018 Feature article by Dr Roseanna Brady. In 2017, Haemochromatosis UK ran an online survey for people with genetic haemochromatosis (GH).  Almost 2,000 people responded.  Because HUK wanted an independent, reliable report from the survey, a research team at the University of Surrey was asked to analyse the responses. The report, LIVING WITH THE IMPACT OF (Read more…)

Report launches at House of Commons on 31 October 2018

Media Release Thursday 1 November 2018 On Wednesday 31 October 2018, Haemochromatosis UK launched successfully the report, “LIVING WITH THE IMPACT OF IRON OVERLOAD: Report from a large survey of people with haemochromatosis” at The House of Commons, Member’s Dining Room. The event was attended by senior clinicians, eminent professors, scientists, senior members of NHS trusts, relevant charities and organisations, (Read more…)

Haemochromatosis UK appoints new trustee

Haemochromatosis UK is very pleased to announce an addition to our board with the appointment of new trustee Mrs Michelle Weerasekera. Michelle was diagnosed with haemochromatosis by chance and was given the details of Haemochromatosis UK by her consultant. She says, “The information provided proved invaluable to both myself and my family in understanding more fully the condition and the (Read more…)

Media Release: The Iron Games – Golf. A Success Story.

Media release Fourth cup contested Friday 12 October 2018 marked the final leg of The Iron Games, the golf tournament, which took place at the Aldenham Golf and Country Club, Watford. Eleven construction companies, forming eight teams, came together to see who would win the final cup of The Iron Games. Previous segments of The Iron Games have included Gaelic (Read more…)

Finalists for the Better Health Awards

20 November 2018 Finalists for the Better Health Awards Last month Haemochromatosis UK won the Patient Safety Learning award for “engaging patients and their families in safety improvement initiatives”, in partnership with AvMA. It is exciting then that we are also finalists for the AbbVie Big Ideas for Better Health Awards.   Background “The AbbVie Big Ideas for Better Health (Read more…)

September fundraising success

1 October 2018 The month of September was a fundraising success as many of our supporters raised funds for Haemochromatosis UK and awareness of the genetic condition. Kevin Kane was diagnosed with genetic haemochromatosis in June 2017 after visiting the GP about seemingly unconnected symptoms. After consultations and venesections he is now in maintenance. This year took on the challenge (Read more…)

Haemochromatosis UK wins Patient Safety Learning Award

28 September 2018 Patient Safety Learning award On Wednesday 26 September 2018 Haemochromatosis UK (HUK) won the Patient Safety Learning award for “engaging patients and their families in safety improvement initiatives.” What are the Patient Safety Learning awards? Patient Safety Learning started these awards in partnership with Action Against Medical Accidents (AvMA) to “recognise and reward healthcare workers for making patient (Read more…)