Live Link to Conference for Intrepid Traveller

At the GH Patients’ Conference on 01 April Trustee Lisa Flude joined the event live from the first day of her 1,000 mile walk raising funds for The Haemochromatosis Society. Please donate to support Lisa at our secure site >> https://cafdonate.cafonline.org/6347

Founder and Secretary Step Down After Long Service

At the society’s AGM on 01 April long standing trustee and secretary David Widden, and founder trustee Janet Fernau MBE, chose to step down from the board and not seek re-election. Janet in particular is well known to many of the society’s members, having created the charity in 1990 and served as director ever since. She was recognised for her (Read More … )

Lisa Launches Long Long Hike for THS

Trustee and GH patient Lisa Flude starts “Lisa and Meg’s Big Tour” this coming weekend, setting off on a hike expected to cover 1,000 miles and raise several thousand pounds for three charities close to her heart – including The Haemochromatosis Society. Lisa will be accompanied by her dog Meg. She has been busy this week packing up the van (Read More … )

Annual General Meeting 2017

Formal notice of AGM Saturday 01 April 16:00 Birmingham Notice is hereby given of The Haemochromatosis Society Annual General Meeting (AGM) 2017. The meeting will be held at The Novotel Hotel and Conference Centre, Broad Street, Birmingham on Saturday 01 April 2017, commencing at 16:00. All paid-up members of the charity are entitled to attend and vote at the AGM. (Read More … )

Welsh GH Social and Support Group

Following a Patient Information Day in Cardiff in January 2017, a group of our Welsh members, led by Trustee Lisa Flude from Cardigan, have formed the Welsh GH Social and Support Group. The new group will be organising its first meeting in the summer of 2017, and will also be setting up a dedicated social media (Facebook) page to allow Welsh members to (Read More … )

GH Patient Conference Programme Unveiled

The Haemochromatosis Society has announced details of the programme for the 2017 GH Patient Conference which takes place on Saturday 01 April in central Birmingham. This year sees the society’s formal AGM moved to the latter part of the day, in order to accommodate a keynote speaker from Rennes, France, in the morning. Eminent Professor of Hepatology Prof Pierre Brissot (pictured) (Read More … )

Society Appoints New Treasurer Trustee

The Haemochromatosis Society has appointed member Roger Keyte as a new trustee and as treasurer of the charity. The appointment comes after Kit Farrow stood down as trustee and acting treasurer in 2016. Roger has been involved with the UK society since 2014. He is affected by haemochromatosis himself, and is also an experienced businessman, accountant and charity worker. He (Read More … )

Society Joins “Work For Good” Making Company Giving Simpler

The Haemochromatosis Society has subscribed to new commercial / company giving facilitators Work For Good (WFG). Many companies, especially small to medium businesses, find it difficult or bureaucratic to give to charities that they may wish to support. ‘Work for Good’ is a new digital platform which overcomes this challenge, as it enable businesses to make donations easily and efficiently (Read More … )

Lisa and Meg’s Big Tour: Trustee Walks 1,000 Miles For THS

The Haemochromatosis Society’s trustee Lisa Flude is undertaking a massive 1,000 mile walk, along with her dog Meg, to explore the midlands and north of the UK and to raise funds for the society, Air Ambulance charities, and The Dogs’ Trust. Lisa left from her home in Cardigan in West Wales on 01 April 2017 and is walking to Skye via North Wales, Leicestershire, (Read More … )

The Haemochromatosis Society is Recruiting

As part of a carefully managed programme of growth and increasing influence, the society is recruiting a part time Events Coordinator to work from its office in Rugby, Warwickshire. David Head, Chief Executive at the charity, said “It’s really exciting that the charity’s activity levels and project plans are such that we need to take on another member of staff. (Read More … )