Finalists for the Better Health Awards

20 November 2018 Finalists for the Better Health Awards Last month Haemochromatosis UK won the Patient Safety Learning award for “engaging patients and their families in safety improvement initiatives”, in partnership with AvMA. It is exciting then that we are also finalists for the AbbVie Big Ideas for Better Health Awards.   Background “The AbbVie Big Ideas for Better Health (Read more…)

September fundraising success

1 October 2018 The month of September was a fundraising success as many of our supporters raised funds for Haemochromatosis UK and awareness of the genetic condition. Kevin Kane was diagnosed with genetic haemochromatosis in June 2017 after visiting the GP about seemingly unconnected symptoms. After consultations and venesections he is now in maintenance. This year took on the challenge (Read more…)

Haemochromatosis UK wins Patient Safety Learning Award

28 September 2018 Patient Safety Learning award On Wednesday 26 September 2018 Haemochromatosis UK (HUK) won the Patient Safety Learning award for “engaging patients and their families in safety improvement initiatives.” What are the Patient Safety Learning awards? Patient Safety Learning started these awards in partnership with Action Against Medical Accidents (AvMA) to “recognise and reward healthcare workers for making patient (Read more…)

Media Release: The Iron Games – Hurling. Battle of the contractors continues.

Media release Third cup contested Eight teams went head to head, on Saturday 22nd September to see who would be crowned hurling champions in the third round of The Iron Games 2018. Sponsored by Toureen Group, The Iron Games bring together teams from eleven construction companies across the country to compete for four Iron Cups. The Tribesmen – consisting of (Read more…)

Edinburgh Patient Information Day Report

Date Saturday 15th September 2018 Venue Radisson Blu Hotel 80 High Street, The Royal Mile, Edinburgh EH1 1TH On Saturday 15th September 2018 we held a Patient Information Day (PID) which took place in Edinburgh, which had just over 70 attendees. PIDs are usually filled with talks featuring medical speakers, updates on the activities of Haemochromatosis UK and are an opportunity (Read more…)

Media Release: Soccer sets up Iron Games for third round drama

Media Release Second Iron Cup Contested The Iron Games 2018 7-a-side soccer competition, one of four sports making up The Iron Games 2018, was completed on Friday evening (31 August). Pressure is on the competing teams – all put up by Irish family construction firms – to take home the four Iron Cups. Two remain up for grabs; for hurling (Read more…)

New treatment for iron overload on trial

The main treatment for haemochromatosis is venesection, and while this represents a safe and effective treatment, the practicalities and immediate side effects can be difficult for patients to deal with. There has long been an interest in developing other ways of treating iron overload and now they may be one step closer. A new trial is being led by a (Read more…)

Haemochromatosis UK appoints new Communications Officer

Haemochromatosis UK, a charity that has grown significantly over the last four years, has appointed a new Communications Officer. Tamana Kaur Gulati (Tam), who is a recent English Literature graduate from The University of Warwick and has worked for the past four years in Educational Outreach, joins the charity which supports people affected by iron overload and increasingly provides healthcare (Read more…)

Media Release:  Irish Firms Bring The Iron Games To London

Media Release Irish Firms Bring The Iron Games To London Photos for media use at We’ve had the Olympics in London, we’ve had the Invictus Games, now this summer construction workers from major London projects like Crossrail and the renovation of The Old War Office are coming together to compete in The Iron Games. Eleven teams from construction firms (Read more…)

7-a-side soccer competition lined up for Barnet FC ground

The soccer element of The Iron Games is set for the early evening of Friday 31 August and members of Haemochromatosis UK are being encouraged to come along and support the competing teams. The tournament is taking place at The Hive (Barnet FC) and is the second element of The Iron Games. The first element, Gaelic Football, was won by (Read more…)