Patient Information Day – Liverpool

We are pleased to announce that we will be holding our next Patient Information Day (PID) in Liverpool. The PID will mark the launch of World Haemochromatosis Week (WHW) and promises to be a lively and informative day which will be opened by Lord Mayor Cllr Christine Banks. DATE AND TIME Sat 2 June 2018 09:30 – 16:00 LOCATION Hotel Novotel (Read more…)

BBC Covers Genetic Haemochromatosis Story

On Friday 02 March BBC Northern Ireland carried radio, TV, online and video coverage about genetic haemochromatosis and the prevalence of the so-called “Celtic Curse” across the island of Ireland. Although there are a couple of inaccuracies, notably reference to “a blood condition”, at The Haemochromatosis Society we are pleased to see mainstream media covering this major health issue. Television (Read more…)

Charity Chairman To Step Down in April

Howard Don, Chair of the board of trustees at The Haemochromatosis Society, is to step down at the charity’s AGM in April, having completed his full elected term of three years. Howard took on the Chairmanship when founder trustee Janet Fernau stood down in 2015, and has overseen the transformation of the charity from a small and entirely voluntary based (Read more…)

Zurich 2018: International Haemochromatosis Meetings: EFAPH

EFAPH is the European Federation of Associations of Patients with Haemochromatosis, an umbrella group bringing together like-minded patient organisations from across the continent. The EFAPH AGM 2018 was held on 11 February and was attended by three representatives from the UK: David Head, Chief Executive; Howard Don, Chairman; and Professor Rob Evans, Scientific Adviser. This is a summary of the (Read more…)

Haemochromatosis Update

Dr John Ryan, Consultant Hepatologist, OUH held a haemochromatosis update meeting on Wednesday 24th of January. The event was well attended and informative with talks from  Mr David Head, CEO, The Haemochromatosis Society.  Patient Support Update  Dr John Ryan, Consultant Hepatologist, OUH Clinical Update  Prof Hal Drakesmith, Assoc Prof of Immunology, Weatherall. Research update  Dr Patricia Bignell, (Read more…)

#TeamIronOverload running the London Marathon 2018

As a growing charity the London Marathon (VLM) forms an important part of our annual events calendar. For the last two years The Haemochromatosis Society has been able to secure places in the VLM and to date our fantastic runners have raised over £30000 to support the work of the charity. As a major event, which generates world wide interest, (Read more…)

Edinburgh PID Postponed

For a number of reasons we have had to postpone our planned Patient Information Day (mini-conference) intended for 24 February, in Edinburgh. This event will instead go ahead on Saturday 15th September. A refund will be offered if you cannot attend the new date. Our apologies for any inconvenience caused. Please click here for more information

THS at Christmas

We wish all of our members, supporters, patients, volunteers, donors … in fact everyone … a very merry Christmas. The THS office will be closed until 02 January and we will not be responding to emails over the holiday period. However you can leave telephone messages on 03030 401101 and we will respond in the first week of the new (Read more…)