Edinburgh Patient Information Day Report

Date Saturday 15th September 2018 Venue Radisson Blu Hotel 80 High Street, The Royal Mile, Edinburgh EH1 1TH On Saturday 15th September 2018 we held a Patient Information Day (PID) which took place in Edinburgh, which had just over 70 attendees. PIDs are usually filled with talks featuring medical speakers, updates on the activities of Haemochromatosis UK and are an opportunity (Read more…)

Media Release: Soccer sets up Iron Games for third round drama

Media Release Second Iron Cup Contested The Iron Games 2018 7-a-side soccer competition, one of four sports making up The Iron Games 2018, was completed on Friday evening (31 August). Pressure is on the competing teams – all put up by Irish family construction firms – to take home the four Iron Cups. Two remain up for grabs; for hurling (Read more…)

New treatment for iron overload on trial

The main treatment for haemochromatosis is venesection, and while this represents a safe and effective treatment, the practicalities and immediate side effects can be difficult for patients to deal with. There has long been an interest in developing other ways of treating iron overload and now they may be one step closer. A new trial is being led by a (Read more…)

Haemochromatosis UK appoints new Communications Officer

Haemochromatosis UK, a charity that has grown significantly over the last four years, has appointed a new Communications Officer. Tamana Kaur Gulati (Tam), who is a recent English Literature graduate from The University of Warwick and has worked for the past four years in Educational Outreach, joins the charity which supports people affected by iron overload and increasingly provides healthcare (Read more…)

Media Release:  Irish Firms Bring The Iron Games To London

Media Release Irish Firms Bring The Iron Games To London Photos for media use at http://haemochromatosis.org.uk/the-iron-games-2018-gaelic-football-gallery/ We’ve had the Olympics in London, we’ve had the Invictus Games, now this summer construction workers from major London projects like Crossrail and the renovation of The Old War Office are coming together to compete in The Iron Games. Eleven teams from construction firms (Read more…)

7-a-side soccer competition lined up for Barnet FC ground

The soccer element of The Iron Games is set for the early evening of Friday 31 August and members of Haemochromatosis UK are being encouraged to come along and support the competing teams. The tournament is taking place at The Hive (Barnet FC) and is the second element of The Iron Games. The first element, Gaelic Football, was won by (Read more…)

The Iron Games: tournament launched to support Haemochromatosis UK

A new sporting tournament is set to highlight devastating disorder affecting Irish families Based on an article in The Irish Post by Fiona Audley  The Iron Games is a tournament highlighting an iron disorder prevalent among Irish people, and will see construction firms in Britain face one another in four sporting events. The inaugural Iron Games 2018 will bring together eight (Read more…)

2019 Conference early bird tickets now on sale.

We’re thinking ahead to next year, our main conference is now booked for 2019. It will be held at the Novotel Coventry, Wilsons Ln, Coventry CV6 6HL on  Saturday 13th of April 2019. We’re excited to be extending the conference to include an option of a conference dinner and overnight stay on Friday 12th April. The dinner will be hosted (Read more…)