How Many Shopping Days ’til Christmas?!

As we scorch in the country’s  worst heatwave since 1976, Haemochromatosis UK is looking forward to cooler times and has launched the charity’s 2018 range of Christmas cards. The 3 designs are now available to order online, along with a triple pack option at a discounted price. All of the profits from the sale of cards is applied to the (Read more…)

GH Challengers Conquer Snowdon Hike

On Saturday 21 July a group of over 40 hikers – #teamironoverload – took part in The GH Challenge 2018, overcoming humid fog, heat and rocky terrain to reach the summit of Mount Snowdon in North Wales. Mount Snowdon is the highest point in Wales at 1,085m (3,560ft). This was the third GH Challenge, previous trips having been made along (Read more…)

Trustee Recruitment at Haemochromatosis UK

Haemochromatosis UK is also actively seeking two further new trustees to join the current eight*. Firstly, a trustee with experience of and a willingness to get involved in project work would be highly valued. Whilst the organisation is still growing the executive team it is essential that board members can contribute proactively to some of the work “on the ground” (Read more…)

New trustee appointed at Haemochromatosis UK

Haemochromatosis UK is delighted to announce an addition to our board with the appointment of new trustee and director Miss Katharine Hough effective immediately. Katharine has haemochromatosis and lives in London, though her family roots are in the North West of England. David Head, Chief Executive at the charity, welcomed the news saying “At 27 Katharine is our youngest trustee (Read more…)

Why do we organise the GH challenge?

The GH challenge is our biggest annual fundraising event. It runs every year in the summer, for 2018 a group of 50 GH patients and supporters will be hiking up and back down Snowdon. The group is made up of a wide range of people all with different abilities and reasons for joining in. We have families, experienced walkers, newly (Read more…)

British Guidelines for Diagnostic and Treatment Pathways Updated

Haemochromatosis UK is very pleased to see that a recent paper by Professor Edward Fitzsimons et al has been adopted by The British Society for Haematology and forms their updated guidelines for diagnosis and treatment of genetic haemochromatosis. In particular, this patient organisation is pleased with the set of 11 recommendations emerging from the paper which will go a long (Read more…)

New magazine feature- Ask Dr Das

Our member’s magazine ‘On the Level’ has had a bit of a face-lift in recent times, in much the same way as the charity as a whole is becoming more professional and influential our publications are becoming more in depth and exciting. Our aim eventually is to produce a ‘glossy mag’ and as part of the process of development, we (Read more…)

Patient Information Day – Liverpool

Our Patient Information Day (PID) in Liverpool was a huge success.  The North West of England has long been a particularly important area of the country for Haemochromatosis UK, we have a high proportion of membership there and a very active local support group running. We expected the information day to be extra special and we were not disappointed.  There (Read more…)