Our Patient Information Day (PID) in Liverpool was a huge success. The North West of England has long been a particularly important area of the country for Haemochromatosis UK, we have a high proportion of membership there and a very active local support group running. We expected the information day to be extra special and we were not disappointed. There was a fabulous energy and enthusiasm among the delegates, who really enjoyed the opportunity to meet and speak to other’s with GH as well as the informative talks from our speakers.
The PID marked the launch of World Haemochromatosis Week (WHW) and was opened by Lord Mayor Cllr Christine Banks. We were so pleased to meet the Mayor who, having previously been unaware of the disorder and it’s links to the region, spoke about her desire to find out more and spread awareness amongst local people. The Mayor also spoke to Granda Reports about the event, World Haemochromatosis Week and the need for more awareness.
We began with a presentation from Dr Dave Das, a Consultant Gastroenterologist who is an expert in Haemochromatosis. The purpose of this talk is to give an overview of the condition and the science behind the symptoms. We then had a presentation on the genetics of haemochromatosis from Brenda Sempasa MPhil from the Haematology Molecular Diagnostics Centre in Manchester. Brenda Sempasa is a Clinical Scientist in Haematology at the Manchester foundation trust.
A break for lunch gave patients and healthcare professionals a chance to network. The afternoon began with our third speaker, Anne Wright- Specialist Diabetes Service BSc, Grad Dip Ed, Grad Dip Nutrition and Dietetics, RD, APD.
Lastly the event is brought to a close with a presentation from our Chief Executive about the work of Haemochromatosis UK and the advances in patient care and awareness we are working towards. The event in Liverpool is one of a series of patient information days we run throughout the year, later this year we will hold similar events in Edinburgh and Bristol and our aim is to cover as much of the UK as possible over the next few years. For more information about future events see http://haemochromatosis.org.uk/pids/