The Haemochromatosis Patient Conference

People at a conference

Each year we run The Genetic Haemochromatosis Patients’ Conference for patients, family members, and others with an interest in the condition. This is an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet and talk to others who are affected by GH.

Click here for a brief report from the 2016 event in Manchester.
Click here for a full report and videos from the 2017 event in Birmingham.
Click here to book a place at the 2018 conference in London (Paddington).

The Haemochromatosis Patient Conference 2018

We are currently making plans for the 2018 event which will be held on 14 April 2018. The event will return to London for the first time since 2015 and our theme will be “Living with and Managing Your Haemochromatosis”.

>> Click here to book <<

Once again we will be including several medical speakers, Q&A sessions and opportunities to link with other patients, as well as introducing new sessions. In addition the society’s formal AGM will follow immediately after the event.

For society paid-up members (plus one guest) the cost is £12 (to cover lunch costs). The delegate fee for further guests and non-member delegates is £32 (includes lunch).

The Outline Programme

900  Registration opens
955  Convene, housekeeping
1000 Welcome by the Chief Executive, The Haemochromatosis Society
1005 Chairman’s opening address
1015 KEYNOTE SPEAKER Dr J Shearman.
1045 Q&A session
1115 Coffee break
1145 SPEAKER Mr Neil McClements. Patient driven change; a personal story
1205 SPEAKER David Head News from THS
1230 Lunch
1340 Reconvene
1345 SPEAKER Evelyn Dorkel Registered Dietitian. Diet and Haemochromatosis.
1410 SPEAKER Yvonne Francis, Clinical Nurse Specialist. Venesection best practice update.
1435 SPEAKER Pain Management. Professor James Elander, Head of Centre for Psychological Research at Derby University.
1500 Q&A session
1545 Chairman’s remarks and close of The GH Conference
1555 Tea Break / departure of non-members
1615 The Haemochromatosis Society AGM 2017. (see separate agenda)
1645 Event close
1730 Vacate room

>> Click here to book <<

“…congratulations to you on an excellent conference – one of the best I have attended and well organised … The speakers were excellent and very informative and Manchester did you proud … Well done to you and looking forward to the next one…”
Delegate 2016

“…just to say how wonderful the conference was on Sat! … all the speakers were really good, and very approachable and open. A big Thank You to your team for putting it together and making it such a success! The society will go from strength to strength…”
Delegate 2016

“…what a great day on Saturday. It ran like clockwork thanks to your hard work and organisation. I thoroughly enjoyed the day.  It was so informative and interesting and the day passed very quickly. Every year I learn more and my understanding increases so that I know a little more. All the speakers were good and each one had a different slant on the subject. Have a well earned rest…”
Delegate 2017