The Haemochromatosis Patient Conference

People at a conference

Each year we run The Haemochromatosis Patient Conference for patients and family members. This is an opportunity to hear from eminent medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet and talk to others who are affected by GH.

The Haemochromatosis Patient Conference 2017

Date: 01 April 2017
Venue: Novotel Hotel  and Conference Centre, Broad Street, Birmingham
Booking: https://ghconference.eventbrite.co.uk

Delegates must book in advance.  Please book early to secure your place as seating is limited.

“…congratulations to you on an excellent conference – one of the best I have attended and well organised … The speakers were excellent and very informative and Manchester did you proud … Well done to you and looking forward to the next one…” Quote from 2016 patient delegate

For society paid-up members (plus 1 guest) we ask for a contribution of £10 for lunch.  Non-member delegates are charged £30 which includes lunch.

Prof Pierre BrissotSpeakers include; Professor Pierre Brissot (pictured) from the University Hospital  Pontchaillou, Rennes, a world renowned hepatologist and expert on haemochromatosis; Dr Edward Fitzsimmons, Consultant Haematologist at Glasgow Gartnaval Hospital; and Dr Patrick Kiely, Consultant Rheumatologist at St George’s hospital, London.  The programme is detailed below.

Also included is plenty of opportunity to ask questions of our speakers and lots of time to talk to other patients. The last session of the day will also be the society’s formal AGM for members.

The Novotel hotel in central Birmingham is a superb conference venue which will host up to 200 delegates. All of the facilities we will use are on the ground floor and very accessible. Delegate places should now be booked online at https://ghconference.eventbrite.co.uk.

Conference Programme 2017

Please note that the programme is subject to change due to any circumstances beyond our control. Changes will be notified here.

0900 Registration (tea and coffee served)
0955 Convene
1000 Welcome: David Head, Chief Executive
1005 Chairman’s opening address: Mr Howard Don, Chair

1015 Session 1: Keynote Speaker

Prof Pierre Brissot
Professor of Hepatology
University Hospital Pontchaillou France

Tests, tests and more tests, what does it all mean?

Followed by a unique opportunity to ask questions of Prof Brissot, one of Europe’s most highly regarded experts on genetic haemochromatosis

1115 Coffee break

Session 2: Patient Influence on our Healthcare Services

1140 SPEAKER Dr Naim Akhtar, Clinical Support Team, NHS Blood & Transplant
The GH Patient Pathway Through the NHS Blood Service

1200 SPEAKER Mr David Head, Chief Executive, The Haemochromatosis Society
Patient Driven Change: A Case Study

1215 SPEAKER Mr Tim Spring, Partner, Moore Blatch Solicitors
Tim is a council member of the Royal Society of Medicine’s Patient’s Safety Section

1235 Q&A with session speakers

1250 Lunch

1340 Reconvene

1345 SPEAKER Dr Kathryn Robson
Geneticist, Weatherall Institute, Oxford University
An introduction to genetics and inheritance patterns in GH

1405 SPEAKER Dr Edward (Ted) Fitzsimons
Consultant Haematologist, NHS Greater Glasgow & Clyde
Talk title to be confirmed

1425 SPEAKER Dr Patrick Kiely
Consultant Rheumatologist, St George’s Hospital, London
Genetic haemochromatosis and joint disease

1445 SPEAKER Dr Barbara Butzeck
The Clinical application of MRI Technology

1505 Q&A session with Drs Butzeck, Robson, Fitzsimons and Kiely

1545 Chairman’s remarks and close of The GH Conference

1555 Tea Break / departure of non-members

1615 The Haemochromatosis Society AGM 2017

1645 Event close

Delegate places should now be booked online at https://ghconference.eventbrite.co.uk.


Reviews of the 2016 GH Conference

“…I thought that Saturday went really well. Very informative, good panel and excellent facilities.  Thank you for organising it all…”

“…congratulations on a most successful conference. The meeting was very well organised and enjoyed by all…”

“…I would like to say thank you very much to you and all the speakers and helpers for a very interesting Saturday afternoon. Also for the organising, and the effort that has been put in the event … keep your good work up and thanks again…”

“…just a quick note to thank you for todays conference – excellent speakers, very informative, and we came away with many questions answered (and many more raised!!)…”

“…congratulations to you on an excellent AGM & Conference – one of the best I have attended and well organised … The speakers were excellent and very informative and Manchester did you proud … Well done to you and looking forward to the next one…”

“…just to say how wonderful the conference was on Sat! … all the speakers were really good, and very approachable and open. A big Thank You to your team for putting it together and making it such a success! The society will go from strength to strength…”

The 2016 Haemochromatosis Society Conference took place in Manchester. The venue included a high quality lecture theatre and a foyer for lunch and coffee breaks allowing plenty of informal discussions amongst over 100 delegates. The conference followed the society’s AGM which took place earlier in the morning.

Delegates were addressed briefly by our Chair (Howard Don) and Chief Executive (David Head) who updated us on some of the society’s activities. We then heard from five eminent medical and scientific speakers on different aspects of GH and the management of the condition. This was followed by a 90 minute Q&A session,  giving the audience the chance to ask questions of all of our speakers. The Q&A is usually the most active part of our meetings and this was no different. Recordings are available at this link and our speakers were:

Dr David Das, a highly respected gastroenterologist recently retired from Stepping Hill Hospital in Stockport with a career-long interest in genetic haemochromatosis and in improving patient pathways.

Dr Edward (Ted) Fitzsimons, Honorary Clinical Associate Professor at the School of Medicine Department of Haematology, Gartnavel General Hospital in Glasgow. In 2015, with others, he published research in the Journal of Clinical Pathology entitled Improved detection of hereditary haemochromatosis.

Prof Stephen Shalet, Emeritus Professor of Endocrinology at Christie Hospital, Manchester and a Consultant Endocrinologist who has practiced in Manchester for over 25 years.

Dr Kathryn Robson, a geneticist at Oxford Universiy’s Weatherall Institute of Molecular Medicine. Dr Robson has published on the genetics of haemochromatosis and on the use of next generation sequencing to screen for 16 genes involved in the body’s iron cycle.

Dr Sherif Boulos, Clinical Research Manager at Resonance Health (RH), the company behind Ferriscan.  In his role with RH, Dr Boulos is responsible for establishing and overseeing clinical trials set up to test the benefits of non-invasive imaging of the liver.

Delegate places for 01 April 2017 should now be booked online at https://ghconference.eventbrite.co.uk.

>> NEXT PAGE