The Genetic Haemochromatosis Patients’ Conference

People at a conference

Each year we run The Genetic Haemochromatosis Patients’ Conference for patients, family members, and others with an interest in the condition. This is an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet and talk to others who are affected by GH. The formal AGM will follow immediately after the event

The Genetic Haemochromatosis Patients’ Conference 2019
Venue: Novotel Coventry M6/J3 Hotel, Wilsons Lane, Coventry, CV6 6HL
Saturday 13 April 2019

The conference returns to our midlands home and our theme will be The future of haemochromatosis

The Outline Programme. (all details subject to change)

9.00-9.30 Registration.

9.30-10.15 Dr Ted Fitzsimons- An overview of haemochromatosis and discussion about the new guidelines, how they will change haemochromatosis care and what is being done to ensure they are implemented.

10.15-11.00 Hal Drakesmith- An update on the research taking place in Oxford.

11.00-11.30- Refreshment Break

11.30-12.00- Patrick Kiely- Update on his research.

12.00-12.30- Q and A session with the three morning speakers

12.30-1.30- Lunch

1.30-2.00- Gerry Mortimer- Progress report on the ‘Best Practice Guidelines’

2.00-3.00- Quick fire presentations (TBC)

3.00-3.30- Refreshment Break

3.30-4.00– Q and A session with the afternoon speakers

4.00-4.30 -David’s report- the future of Haemochromatosis UK

4.30-5.00 Break

5.00 AGM

There are several ticket options available including  a dinner bed and breakfast package. All the different options can be viewed on Eventbrite where you can also purchase tickets.

Click here for a report from the 2018 event in Paddington, London, on 14 April.
Video and audio from the 2018 event will be linked here shortly.

Click here for a report from the 2017 event in Birmingham, on 01 April.
Click here for videos of the 2017 event
in Birmingham.


“…Please pass on my thanks to you and all the staff who organised the conference on the 14th April.  I thoroughly enjoyed the day – it was so well organised and informative and great to meet so many people to share our experiences. The hotel was a great venue and the refreshments and lunch were amazing. Again thank everyone who obviously worked and planned so hard to achieve such an outstanding day…”
Sue, delegate 2018

“…what a great day on Saturday. It ran like clockwork thanks to your hard work and organisation. I thoroughly enjoyed the day.  It was so informative and interesting and the day passed very quickly. Every year I learn more and my understanding increases so that I know a little more. All the speakers were good and each one had a different slant on the subject. Have a well earned rest…”
Delegate 2017

“…congratulations to you on an excellent conference – one of the best I have attended and well organised … The speakers were excellent and very informative and Manchester did you proud … Well done to you and looking forward to the next one…”
Delegate 2016

“…just to say how wonderful the conference was on Sat! … all the speakers were really good, and very approachable and open. A big Thank You to your team for putting it together and making it such a success! The society will go from strength to strength…”
Delegate 2016