The Genetic Haemochromatosis Patients’ Conference

People at a conference

Each year we run The Genetic Haemochromatosis Patients’ Conference for patients, family members, and others with an interest in the condition. This is an opportunity to hear from renowned medical and other speakers, take part in wide-ranging question-and-answer sessions, and to meet and talk to others who are affected by GH.

Click here for a report from the 2018 event in Paddington, London, on 14 April.
Video and audio from the 2018 event will be linked here shortly.

Click here for a report from the 2017 event in Birmingham, on 01 April.
Click here for videos of the 2017 event
in Birmingham.

The Genetic Haemochromatosis Patients’ Conference 2019

The 2019 event, to be held on Saturday 13 April 2019, will be in Coventry. Full details will be posted here as soon as possible.

The conference returns to our midlands home and our theme will be Behind the Science: Real Life Haemochromatosis.

Once again we will be including several medical speakers, Q&A sessions and opportunities to link with other patients, as well as introducing new sessions. The society’s formal AGM will follow immediately after the event.

For society paid-up members (plus one guest if required) the delegate fee is £TBC. The delegate fee for further guests and non-members is £TBC. Delegate fees include all refreshments and a full lunch.

The Outline Programme

0900  Registration opens
0955  Convene, housekeeping
1000 Welcome by the Chief Executive, The Haemochromatosis Society
1005 Chairman’s opening address
1015 KEYNOTE SPEAKER
1045 Q&A session
1115 Coffee break
1145 SPEAKER
1205 SPEAKER
1230 Lunch
1340 Reconvene
1345 SPEAKER
1410 SPEAKER
1435 SPEAKER
1500 Q&A session
1545 Chairman’s remarks and close of The GH Conference
1555 Tea Break / departure of non-members
1615 The Haemochromatosis Society AGM 2019
1645 Event close

To attend the event delegates must book in advance, more information about booking will be available late in 2018.


“…Please pass on my thanks to you and all the staff who organized the conference on the 14th April.  I thoroughly enjoyed the day – it was so well organized and informative and great to meet so many people to share our experiences. The hotel was a great venue and the refreshments and lunch were amazing. Again thank everyone who obviously worked and planned so hard to achieve such an outstanding day…”
Sue, delegate 2018

“…what a great day on Saturday. It ran like clockwork thanks to your hard work and organisation. I thoroughly enjoyed the day.  It was so informative and interesting and the day passed very quickly. Every year I learn more and my understanding increases so that I know a little more. All the speakers were good and each one had a different slant on the subject. Have a well earned rest…”
Delegate 2017

“…congratulations to you on an excellent conference – one of the best I have attended and well organised … The speakers were excellent and very informative and Manchester did you proud … Well done to you and looking forward to the next one…”
Delegate 2016

“…just to say how wonderful the conference was on Sat! … all the speakers were really good, and very approachable and open. A big Thank You to your team for putting it together and making it such a success! The society will go from strength to strength…”
Delegate 2016

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