Groups and Meetings

NW Group MeetingOne of the most important things we do is facilitate meetings of people who are affected by genetic haemochromatosis (GH).

The Haemochromatosis Society as a national organisation organises conferences and patient information days from time to time. Please visit our events page for news of our main events planned over the next few months.

Independent volunteer groups in several cities also arrange regular local meetings for GH patients and their families. Often these will include refreshments and speakers, the opportunity to ask questions of medical experts, and a chance to share experiences with other patients and families.

GH North-West Support Group

We are affiliated to the GH North West Support Group (GHNWSG). As well as arranging patient meetings the group works to raise awareness in the north-west of England. They are run by hard working volunteers who are all affected or have family members who are affected. You can learn more about the group, check their next meeting dates and make contact by visiting their website at GH North West Support Group.

Blackpool, Fylde and Wyre GH Support Group

We are affiliated to the Blackpool, Fylde and Wyre GH Support Group. For further details of this group and their events you can contact Marguerite Smith on 07768 042802, by email at margueritesmith@blueyonder.co.uk, or at their website at http://blackpool.haemochromatosis.org.uk.

Wales GH Social and Support Group

This fledgling group have emerged from a meeting in Cardiff in early 2017. If you would like to get involved in helping please email wales@haemochromatosis.org.uk.

East Midlands GH Support Group

This fledgling group have emerged from a  meeting in Northampton in late 2016. If you would like to get involved please email eastmidlands@haemochromatosis.org.uk.

Keeping you informed

You can ensure you have advance notice of patient meetings by becoming a member of the society so that you receive our regular magazine and email bulletins. At meetings where space is limited priority is given to members although we always endeavour to accommodate non-members if we can, especially if you have been newly diagnosed.

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