One of the most important things we do is facilitate meetings of people who are affected by genetic haemochromatosis (GH). Meeting and talking to other patients is often the best way to learn about haemochromatosis and how to deal with it.
In some areas independent volunteer groups in several cities also arrange regular meetings for GH patients and their families. Often these will include refreshments and speakers, the opportunity to ask questions of medical experts, and a chance to share experiences with other patients and families. If you are looking to set up a local support group, Haemochromatosis UK are happy to help. If you would like information on how to do this, contact: email@example.com
GH North-West Support Group
The GH North West Support Group (GHNWSG) is affiliated to Haemochromatosis UK (HUK). As well as arranging patient meetings the group works hard to raise awareness in the North-West of England. The group is run by hard working volunteers who are all affected or have family members who are affected. You can learn more about the group, check their next meeting dates and make contact by visiting their website at northwest.haemochromatosis.org.uk/.
Blackpool, Fylde and Wyre GH Support Group
The Blackpool, Fylde and Wyre GH Support Group is also affiliated to HUK. For further details of this group and their events you can contact Marguerite Smith on 07768 042802, by email at firstname.lastname@example.org, or at their website which you can find at blackpool.haemochromatosis.org.uk. The group meets quarterly in Blackpool.
Wales GH Social and Support Group
This group have emerged following a successful patient meeting in Cardiff in early 2017. If you would like to learn more or get involved in helping please make contact through the group’s Facebook Group at https://www.facebook.com/groups/373045636411063 or email our trustee Lisa Flude at email@example.com.
Suffolk Support Group
The Suffolk Support Group have had two successful meetings meetings. To find out more or to get involved contact Wendy Schofield at firstname.lastname@example.org.
Northern Ireland Support Group
This group is in its early stages of creation and is being set up and after a successful meeting in Belfast. You can find out more or ask about how to get involved in helping run the Northern Ireland Support Group through Facebook: https://www.facebook.com/groups/472785796585578/
Keeping you informed
You can ensure you have advance notice of patient meetings by becoming a member of the society. As a member you will receive our regular magazine and email bulletins. At meetings we always welcome non-members; you will find the meeting especially helpful if you have been newly or recently diagnosed.
Patient Information Days
Haemochromatosis UK as a national organisation organises conferences and patient information days throughout the year.
Please visit our events page for news of our main events planned over the next few months.