Reading and Links

Here are some more sources of additional information. If you are aware of any other useful links that would be of interest to haemochromatosis patients please let us know.

We provide all of these links in good faith, but we are not responsible for the content of any other website or publication linked to from this site.

This information is provided primarily for patients. In addition, links to more in depth scientific and clinical information are available on our Advanced Reading page

Haemochromatosis internet links

Wikipedia (unendorsed content)
NHS Choices (NHS information on haemochromatosis)
Northern Genetics Service
Newcastle Hospitals Medical Jargon Buster
North West Haemochromatosis Support Group
LiverNorth Support Group
Carers Direct (NHS information, advice and support for carers)
Expert Patients Programme (courses to help people manage long term conditions)


A number of books are available on haemochromatosis through this Amazon link

Other relevant UK patient support organisations

Arthritis Care
Arthritis Research Campaign
Arthritis Action (with great online self-management resources)
British Liver Trust
The Cardiomyopathy Association
Diabetes UK
Genetic Alliance
Mind (Mental Health)
National Osteoporosis Society
Self Help UK
Sexual Dysfunction Association

Other haemochromatosis societies (English Language)

The Canadian Hemochromatosis Society
Irish Haemochromatosis Association
Haemochromatosis Australia
Haemochromatosis Society of South Africa
Iron Disorders Institute (USA)

Other organisations that might help

Association Hemochromatose (France, French)
Hemochromatose Vereniging (Netherlands, Dutch)
Rheumatoid Arthritis Support Network (USA, English)