Haemochromatosis to be debated at Westminster

Chair of the All Party Parliamentary Group for Genetic Haemochromatosis (APPGGH) Mark Pawsey MP has secured a one-hour Westminster Hall debate in parliament next week, in which he will raise issues around diagnosis and management of the condition. Other MPs will also be able to speak on the subject, which is relevant to all MPs because the prevalence of genetic (Read more…)

New treatment for iron overload on trial

The main treatment for haemochromatosis is venesection, and while this represents a safe and effective treatment, the practicalities and immediate side effects can be difficult for patients to deal with. There has long been an interest in developing other ways of treating iron overload and now they may be one step closer. A new trial is being led by a (Read more…)

Haemochromatosis UK appoints new Communications Officer

Haemochromatosis UK, a charity that has grown significantly over the last four years, has appointed a new Communications Officer. Tamana Kaur Gulati (Tam), who is a recent English Literature graduate from The University of Warwick and has worked for the past four years in Educational Outreach, joins the charity which supports people affected by iron overload and increasingly provides healthcare (Read more…)

Trustees complete term of office

Trustees Nick Howes and Paul Hirons are both to step down from the board of The Haemochromatosis Society when they complete their elected terms of office in April. Trustees are generally appointed for three year cycles and can stand for re-election, however both have decided not to stand again at this year’s AGM on 14 April in London. Paul Hirons now (Read more…)

Society Training Material Secures Major Endorsement

Training material produced by The Haemochromatosis Society in partnership with Boots Pharmacies has now been fully endorsed by The Royal Pharmaceutical Society (RPS), certifying the training to be of high quality and at a CPD level suitable for pharmacists and pharmacy technicians. The literature was originally produced in late 2015 and amended/updated slightly in mid 2017. The RPS endorsement was confirmed (Read more…)

Team Iron Overload Gear Up For 26 Mile London Challenge

Five runners are taking part in The Virgin London Marathon later this month, raising funds for the charity and also raising awareness of haemochromatosis amongst their families, friends, and other supporters. This is the second year that Team Iron Overload has taken part in the country’s largest mass participation sporting event, and one of the world’s most successful charity fundraising events. (Read more…)

The GH Challenge 2016: Ascent of Ben Nevis

Over Bank Holiday weekend (August 27-29) a very intrepid group of supporters of The Haemochromatosis Society took on The GH Challenge 2016. For the first of what will be annual GH challenges, participants took on the mighty Ben Nevis, climbing from just a few meters above sea level to the highest point in the UK at 1,345 metres (4,410 feet). (Read more…)

Haemochromatosis and Arthropathy: Research Published

A recent article published in the Scandinavian Journal or Rheumatology has confirmed that unexplained joint problems should prompt doctors to take up diagnostic tests for genetic haemochromatosis and iron overload. The article was published by Dr Richardson and Dr Kiely of St George’s University Hospital in London, and Dr Prideaux of the University of Cardiff, and is entitled “Haemochromatosis: unexplained (Read more…)

Long Serving Founder and Chair Steps Down

On 06 June 2015 our longest serving Trustee, founder Mrs Janet Fernau, stood down as chair of The Haemochromatosis Society. Janet was presented with an engraved rose bowl (and numerous roses!) by Dr James Dooley at the Royal Free Hospital (pictured) following a valediction by Mr Kit Farrow (Treasurer) on behalf of all of the trustees and members. (click for full (Read more…)