Report launches at House of Commons on 31 October 2018

Media Release Thursday 1 November 2018 On Wednesday 31 October 2018, Haemochromatosis UK launched successfully the report, “LIVING WITH THE IMPACT OF IRON OVERLOAD: Report from a large survey of people with haemochromatosis” at The House of Commons, Member’s Dining Room. The event was attended by senior clinicians, eminent professors, scientists, senior members of NHS trusts, relevant charities and organisations, (Read more…)

Survey Closes With Over 2,200 Responses

The Genetic Haemochromatosis Patient Survey 2017, a major project to collect and analyse data from patients, has just closed to new data with over 2,200 responses having been recorded. Over the next few weeks the survey data will now be downloaded, de-duplicated and encrypted, before being anonymised and encoded. The dataset will then be used over the next few months (Read more…)

The Haemochromatosis Patient Survey 2017

The Haemochromatosis Society is pleased to announce the launch of a major survey of people diagnosed with genetic haemochromatosis and people who have been identified as having the faulty genes which can cause haemochromatosis (iron overload). Patients in the UK and beyond are invited to complete The Haemochromatosis Society 2017 Patient Survey, which is the first major project to collect data (Read more…)