Welsh GH Social and Support Group

Following a Patient Information Day in Cardiff in January 2017, a group of our Welsh members, led by Trustee Lisa Flude from Cardigan, have formed the Welsh GH Social and Support Group. The new group will be organising its first meeting in the summer of 2017, and will also be setting up a dedicated social media (Facebook) page to allow Welsh members to (Read More … )

Society Appoints New Treasurer Trustee

The Haemochromatosis Society has appointed member Roger Keyte as a new trustee and as treasurer of the charity. The appointment comes after Kit Farrow stood down as trustee and acting treasurer in 2016. Roger has been involved with the UK society since 2014. He is affected by haemochromatosis himself, and is also an experienced businessman, accountant and charity worker. He (Read More … )

Society Joins “Work For Good” Making Company Giving Simpler

The Haemochromatosis Society has subscribed to new commercial / company giving facilitators Work For Good (WFG). Many companies, especially small to medium businesses, find it difficult or bureaucratic to give to charities that they may wish to support. ‘Work for Good’ is a new digital platform which overcomes this challenge, as it enable businesses to make donations easily and efficiently (Read More … )

Conference: New Understanding Of Genetic Haemochromatosis

The Haemochromatosis Society is delighted to announce a specialist one-day scientific/medical CPD accredited conference exploring and debating new understandings of the pathology, diagnosis and management of genetic haemochromatosis. This event is supported by Resonance Health. This important event, the first for many years in the UK focusing on genetic haemochromatosis, will encompass: The role of transferrin saturation as a diagnostic and monitoring (Read More … )

Buzz Generated at GH Patient Information Day, Cardiff

An audience of some 80 people, 3 excellent speakers. an ideal venue and dozens of questions meant that The Haemochromatosis Society’s Patient Information Day (PID) at The Futures Inn in Cardiff on 07 January was a great success. There was a real “buzz” in the room as many of the delegates had not had the opportunity before to talk to (Read More … )

East Midlands Patient Group Meeting

Patients and families were invited to a genetic haemochromatosis patient meeting at The Cripps Education Centre in Northampton on 19 November. The meeting was organised by the newly formed East Midlands GH Support Group. Some 50 people took advantage of the opportunity to hear from Cristina Testa, a Specialist Dietitian from Northamptonshire Healthcare Foundation Trust, and David Head, Chief Executive at The Haemochromatosis Society. Our (Read More … )

Dietitian Presents To Glasgow Patient Group

Members of the charity and non-members alike were invited to a genetic haemochromatosis patient meeting in Glasgow yesterday (Saturday 29 October). Around 45 people turned up to hear from our speaker Lesley Reid. Lesley is a registered dietitian with HCPC (the Health and Care Professions Council) and an active member of the The British Dietetic Association. She also works directly with (Read More … )

Society Chairman Discusses Haemochromatosis on Irish TV

A recent episode of “Out and About in Manchester”, a regular magazine show on Irish TV, included a feature on genetic haemochromatosis (GH). GH is more prevalent in people of Irish ancestry, with as many as 1 in 8 suspected as being carriers of the faulty gene or genes. Haemochromatosis is even sometimes referred to as “The Celtic curse”.  For (Read More … )

“Easily Missed” Haemochromatosis: British Medical Journal

In a recent article readers of The British Medical Journal were warned how genetic haemochromatosis is “easily missed” in general practice. The article gives a very useful overview of the condition, especially in situations where GPs and other healthcare professionals are unaware of GH as a potential diagnosis. David Head, Chief Executive at The Haemochromatosis Society, said “We know that GH (Read More … )