GH Challengers Complete Hadrian’s Wall Trail

A group of hardy trekkers have just completed a 5 day, 87 mile hike along the length of the iconic Hadrian’s Wall in the north of England to raise funds for The Haemochromatosis Society and raise awareness of GH. (Click on any image for full size version) The GH Challenge 2017 left Bowness-on-Solway on the west coast of Cumbria on Monday (Read More … )

Trustee Recruitment at The Haemochromatosis Society

THS is actively seeking new trustees to join the current board following the resignation of long standing trustees Janet Fernau and David Widden at our AGM last month. In particular, new trustees with skills and experience in fundraising, dealing with regulatory/governance issues, and media/communications are needed. Chairman Howard Don said “We are keen to expand the board and to take (Read More … )

Events Boost for The Haemochromatosis Society

The Haemochromatosis Society has appointed a part time Events Coordinator to help build our events programme. Debs Knight will be working on fundraising events and our programme of patient information and educational days. Debs joined the team in Rugby last week, though many of our members would have met her at our main conference early in April, which she attended (Read More … )

Patients’ 2017 Conference “A great success”

The Genetic Haemochromatosis Patients’ Conference 2017, which was held in Birmingham earlier this month, has been hailed as a great success. The event brought together about 150 delegates and was the largest ever gathering of GH patients in the UK. A series of superb speakers addressed delegates and answered questions, and the excellent venue and catering meant that people were able (Read More … )

Doctors of the Future Given Insight into Iron Overload

On 31 March 2017 The Haemochromatosis Society ran a scientific and medical conference for healthcare professionals. Included in the audience were several guest delegates from Handsworth Grammar School in Birmingham – sixth form students with an interest in biology and aspirations to go on to university and study medicine. David Head, Chief Executive at the society, said “The students were (Read More … )

Lisa Launches Long Long Hike for THS

Trustee and GH patient Lisa Flude starts “Lisa and Meg’s Big Tour” this coming weekend, setting off on a hike expected to cover 1,000 miles and raise several thousand pounds for three charities close to her heart – including The Haemochromatosis Society. Lisa will be accompanied by her dog Meg. She has been busy this week packing up the van (Read More … )

Welsh GH Social and Support Group

Following a Patient Information Day in Cardiff in January 2017, a group of our Welsh members, led by Trustee Lisa Flude from Cardigan, have formed the Welsh GH Social and Support Group. The new group will be organising its first meeting in the summer of 2017, and will also be setting up a dedicated social media (Facebook) page to allow Welsh members to (Read More … )

Society Appoints New Treasurer Trustee

The Haemochromatosis Society has appointed member Roger Keyte as a new trustee and as treasurer of the charity. The appointment comes after Kit Farrow stood down as trustee and acting treasurer in 2016. Roger has been involved with the UK society since 2014. He is affected by haemochromatosis himself, and is also an experienced businessman, accountant and charity worker. He (Read More … )

Society Joins “Work For Good” Making Company Giving Simpler

The Haemochromatosis Society has subscribed to new commercial / company giving facilitators Work For Good (WFG). Many companies, especially small to medium businesses, find it difficult or bureaucratic to give to charities that they may wish to support. ‘Work for Good’ is a new digital platform which overcomes this challenge, as it enable businesses to make donations easily and efficiently (Read More … )

Conference: New Understanding Of Genetic Haemochromatosis

This event was held on Friday 31 March 2017.  The Haemochromatosis Society was delighted to run a specialist one-day scientific/medical CPD accredited conference exploring and debating new understandings of the pathology, diagnosis and management of genetic haemochromatosis. This important event, the first for many years in the UK focusing on genetic haemochromatosis, encompassed discussions on: The role of transferrin saturation as a diagnostic (Read More … )