International GH Meetings June 2017

Two important international meetings took place on the weekend of Sunday 25 June and Monday 26 June 2017, as the European Federation of Associations of Patients with Haemochromatosis (EFAPH) and the European Iron Club (EIC) gathered in Muenster, Germany. The Haemochromatosis Society was being represented at the meetings by scientific adviser Professor Rob Evans and our Chief Executive David Head, both of (Read More … )

The Haemochromatosis Patient Survey 2017

The Haemochromatosis Society is pleased to announce the launch of a major survey of people diagnosed with genetic haemochromatosis and people who have been identified as having the faulty genes which can cause haemochromatosis (iron overload). Patients in the UK and beyond are invited to complete The Haemochromatosis Society 2017 Patient Survey, which is the first major project to collect data (Read More … )

Patients’ 2017 Conference “A great success”

The Genetic Haemochromatosis Patients’ Conference 2017, which was held in Birmingham earlier this month, has been hailed as a great success. The event brought together about 150 delegates and was the largest ever gathering of GH patients in the UK. A series of superb speakers addressed delegates and answered questions, and the excellent venue and catering meant that people were able (Read More … )

Doctors of the Future Given Insight into Iron Overload

On 31 March 2017 The Haemochromatosis Society ran a scientific and medical conference for healthcare professionals. Included in the audience were several guest delegates from Handsworth Grammar School in Birmingham – sixth form students with an interest in biology and aspirations to go on to university and study medicine. David Head, Chief Executive at the society, said “The students were (Read More … )

Lisa Launches Long Long Hike for THS

Trustee and GH patient Lisa Flude starts “Lisa and Meg’s Big Tour” this coming weekend, setting off on a hike expected to cover 1,000 miles and raise several thousand pounds for three charities close to her heart – including The Haemochromatosis Society. Lisa will be accompanied by her dog Meg. She has been busy this week packing up the van (Read More … )

Annual General Meeting 2017

Formal notice of AGM Saturday 01 April 16:00 Birmingham Notice is hereby given of The Haemochromatosis Society Annual General Meeting (AGM) 2017. The meeting will be held at The Novotel Hotel and Conference Centre, Broad Street, Birmingham on Saturday 01 April 2017, commencing at 16:00. All paid-up members of the charity are entitled to attend and vote at the AGM. (Read More … )

Welsh GH Social and Support Group

Following a Patient Information Day in Cardiff in January 2017, a group of our Welsh members, led by Trustee Lisa Flude from Cardigan, have formed the Welsh GH Social and Support Group. The new group will be organising its first meeting in the summer of 2017, and will also be setting up a dedicated social media (Facebook) page to allow Welsh members to (Read More … )

Marathon Runners Hit £20k Mark

Members of Team Iron Overload – the stars that ran The Virgin London Marathon for The Haemochromatosis Society – have reached a total fundraising income of £20,000, with donations still coming in, gift aid to claim, and some pledged monies still expected to add significantly to this total over the next few weeks. The team of 9 athletes all completed the VLM (Read More … )