Terms and Conditions

Important Disclaimer

We publish on this site in good faith but without any warranty of any kind, express or implied, as to the accuracy or validity of the information provided. Haemochromatosis UK shall not be liable for any loss, damage, or other consequences arising from the use of the website or attributed to any inaccuracies or omissions therein. Specifically, information provided about haemochromatosis and associated physiology or treatment does not constitute individual medical advice and must not be regarded as such. Users must consult their own doctor or consultant. Do not rely on information on the site to manage your or your family’s health. The charity accepts no liability and will not entertain any form of claim in this regard.

Site Use

This section outlines the terms and conditions which you agree to in using this website. This website is hosted by Haemochromatosis UK. Please read our conditions of use carefully as by using the website you will be assumed to have agreed to be bound by them. We reserve the right to vary the conditions of use at any time and will post any variations here. You are advised to review the conditions of use on a regular basis as you will be deemed to have accepted variations if you continue to use the website after they have been posted.

Haemochromatosis UK publishes the site and information contained in it without any warranty of any kind, express or implied, as to the operation of the site, the accuracy or validity of the information, or any associated products and services, in so far as any such warranties can be excluded under relevant law. We shall not be liable for any loss, damage, or other consequences arising from the use of the website or attributed to any inaccuracies in or omissions from the information contained in it. Content and information provided by third parties is identified as such. We publish this content as supplied to us and are not responsible for its accuracy or timeliness. You must take appropriate steps to verify this information before acting upon it.

Any financial information on the website is provided in good faith, however donors and potential donors should take reasonable steps to ensure they are satisfied with the finances and objectives of the charity, as donations once given cannot be returned. Our financial reports are separately available from the Charity Commission.

Any reference to any product or service which has been or may be provided by the charity does not amount to a promise that such product or service will be available at any time. Changes to such products or services may be made at any time without notice.

Copyright in the design of these pages including our logo is owned by the charity. The charity also owns the copyright in the content published on the website except where otherwise indicated. Images, trademarks and brands may also be protected by other intellectual property laws and may not be reproduced or appropriated in any manner without written permission of their respective owners. You may make single print copies of such parts of the website as you may reasonably require for your own personal use. All other replication is prohibited without our express permission, which will not be unreasonably withheld.

Haemochromatosis UK is not responsible for the content of any other website from which you have accessed this website or to which you may hyperlink from this website. We cannot be held liable for any loss or damage you incur as a result of your use of any other site from which you hyperlink to or from this website.

These conditions of use are governed by the laws of England and Wales and you agree that the English courts shall have exclusive jurisdiction in any dispute. To the extent that any part of these conditions of use is found to be invalid, unlawful or unenforceable by any court of competent jurisdiction such part shall to that extent be severed from the remaining terms all of which shall remain in full force and effect as permitted by law.

Your Privacy and The General Data Protection Regulations

This section outlines how we use and store your information. Haemochromatosis UK is registered with the Information Commissioner. We do not share any information with third parties unless (1) required to do so by law or (2) we have explicit content to exchange data in individual cases (for example if we link a patient with a particular organisation to offer support).

Our web server tracks basic information using “cookies”; none of this information can personally identify you. This information is used for routine statistical purposes.

Personal data is collected from:

  • online application and contact forms (for example, event bookings or membership registration)
  • mailed or telephoned donations
  • a mailing list you explicitly subscribe to (for example, our news bulletin)
  • online purchases (for example, of our charity Christmas Cards or raffle tickets)

We do not collect any information automatically; we only collect information you knowingly provide.

This information may be used to:

  • fulfil your requests (for example, to send your order)
  • communicate with you on administrative matters (for example, to let you know about events)
  • keep you informed about the charity and our work
  • ask for your support
  • send you members’ communications (if you are a member)
  • for statistical analyses.

When you make a purchase, pay a subscription, or give a donation online through Paypal, CAF, Justgiving, or similar sites the charity does not have access to and does not have any cause to retain your credit card information.

If you provide bank details for a Direct Debit Mandate these are retained only for the purpose of processing payments by the charity and our payment processors (CAF Bank). If you send us a cheque we may retain a note of your bank sort code and account number for administrative purposes.

If you complete an offline (paper) form to make a subscription or donation these may include credit or debit card details. These forms are retained in order that the charity can claim Gift Aid (tax relief) on your donation. The forms are retained securely at our office and are not used for any other purpose.

You have a right to request a copy of any personal data held by us. To obtain a copy of this information you should write to us at the address below.


Donations cannot normally be refunded except at the discretion of the Trustees which is unlikely to be applied. Membership subscriptions are non-refundable if membership is cancelled part way through a year. Any purchases are protected by the usual UK consumer protection legislation.


If you have a complaint about the charity’s website, activities or administration please contact the Chief Executive by email using chiefexec@huk.org.uk in the first instance with your concern. Please make it clear you are making a complaint. At this stage we will endeavour to resolve things informally. We will respond by email within 10 working days.

If you are still dissatisfied please write a letter to the Chief Executive or The Chair of the charity and send it to the address below. We will respond within 15 working days.