Volunteers raise £3000 for Haemochromatosis UK

Media Release

16 Nov 2018

October and November have been busy months for Haemochromatosis UK with the launch of the Iron Overload Report and the recently published BBC article about haemochromatosis. All of this work is only possible because of HUK members and fundraisers.

The past few months have also been busy for HUK fundraising volunteers, who have in total raised almost £3000 in these two months alone!

Golf day and raffle

Neil Sillett, a member of Haemochromatosis UK, organised a golfing event and raffle on October 30 2018 to fundraise for the charity.

Neil said, “the day went really well… We raised £700 and Corrina took that back with her”

Corrina Towers, Chair of Haemochromatosis UK says, We were delighted to be one of two chosen charities for the fundraising golf day organised by Neil Sillett”.

Corrina added, “It was a beautifully bright but cold day so I made use of the outdoor refreshment hut as an educational spot to tell interested participants about our condition and our cause. It was an all-male cast who could relate to people passing symptoms off as merely aging. The raffle was well supported and raised us £700 plus I got to sell Harry Redknapp tickets whilst telling him all about GH!”

Exeter Male Voice Choir

On 9 November 2018 the Exeter Male Voice Choir worked with Ian and Jenny Lees, members and fundraisers for HUK, to raise money for Force Cancer Charity, The Royal British Legion and Haemochromatosis UK. Penny Smith-Wiseman was a guest singer at the event.

Ian and Jenny Lees commented, “It was a fabulous evening of modern music including a talented Youth Band. Celebrating the lives of loved ones lost, due to Cancer and Haemochromatosis.  The money raised for research and education”

The hugely successful event raised £950 for Haemochromatosis UK

David Head, Chief Executive of HUK says, “It was a lovely evening. The choir, band and Penny all put on a great show and the sell-out audience were thoroughly entertained. Of course I am very grateful for the fundraising support which is essential for us, but I was also very impressed with how Jenny and Ian have been raising awareness of iron overload amongst their friends and colleagues in the audience. I really hope the concert becomes an annual event and if so I shall certainly be in Exeter again next year.”

New York Marathon

Susan Oliver ran the New York Marathon on 4 November 2018. She ran in memory of her brother David. Susan was initially going to run the London Landmark’s Half Marathon but was unable to do this due to ill health. However, she bounced back and instead ran the NY marathon, raising £789 for Haemochromatosis UK!

Susan says, “I ran this in memory of my brother David. He passed away at the age of 41. As my siblings and I were not diagnosed with Haemochromatosis until years later we cannot know for sure whether or not David had the condition or not. However he did suffer from some of the symptoms and it may have contributed towards his death.”

Debs Knight, Events and Fundraising Coordinator at HUK says, “Congratulations to Susan on such a fantastic achievement. Anyone that runs a marathon is amazing in my eyes and especially after coming back from ill health. Susan never gave up and was able to take part in a once in a lifetime race while supporting a charity that is close to her heart. Support from people like Susan, who are willing to challenge themselves and raise money for HUK is absolutely invaluable to us, Not only financially but every time someone takes part in their own event they raise vital awareness of the condition.”

Facebook Birthday Fundraisers

Over the past few months, since Facebook has introduced a fundraising for birthday tool on their website, many supporters have been running birthday fundraisers for HUK. This has raised over £500 for Haemochromatosis UK.

Debs Knight, Events and Fundraising Coordinator at HUK says, “Thank you so much to Luke Sam Smith Taylor, John McNally, Becky Symmons, Stace Bowers and Dave Hoskins for running Facebook fundraisers for us in honour of your birthdays. The donations from your family and friends make a huge difference to the charity and allow us to offer support and raise awareness. We really appreciate you choosing to support us!

Thank you to all those that have ran fundraising events over the past few months, and to those who have donated to their fundraising campaigns. To keep up to date with our fundraising activities, like and follow us Facebook and Twitter.



Haemochromatosis/GH: a genetic disorder causing the body to absorb excessive iron from the diet. Characterised by joint pain and disease, chronic fatigue and weakness, cognitive and psychological difficulties, sexual health issues, skin problems, abnormal liver function, diabetes, and cardiomyopathy. Iron overload can be fatal. It is usually easily treated if diagnosed early.

If you believe you have haemochromatosis or any other condition, please talk to your GP.