HUK was delighted to see iron overload (genetic haemochromatosis) debated in parliament yesterday (03 July 2019) for a full hour, in the presence of health minister Mrs Seema Kennedy MP and led by Mark Pawsey MP, Chair of the All Party Parliamentary Group on Genetic Haemochromatosis.
The debate was wide ranging, with MPs touching on symptoms, prevalence, penetrance, and on the major issue of significant underdiagnosis. There was considerable emphasis on the dual benefit of early diagnosis – alleviating patient suffering and saving NHS resources. Members were present from across the UK and across the political parties. Several had responded to contact from constituents affected and who had been prepared to tell their stories.
The full debate was recorded by ParliamentLive TV and can be viewed here:
The event was also transcribed to Hansard (the permanent official online record of proceedings in the UK Parliament). The transcription can be accessed at this link:
Haemochromatosis UK will be responding to the debate in the coming week.