Why do we need membership?


As well as a charity, we are a membership organisation.

But why do we need members?

The annual membership fee contributes to the basic running costs of the society, enables us to run the website and allows us to produce the information booklets we send out. Without membership, the charity would not be able to provide any of the support and information services that we do, including the Facebook support group and the helpline.

However, there is an even more important reason to become a member.

By joining us you add your patient voice to ours!

We are working hard to improve early diagnosis, we want prevent the unnecessary loss of family and friends from what should be a perfectly treatable disorder. Improvements have been made but we still hear about far too many deaths due to missed or late diagnosis. The bigger we are as an organisation the louder we can shout about awareness.

We also want to improve patient care, for example through education for venesection nurses and online training for your GP’s. These projects together with supporting new research and campaigning for a better patient pathway means we have the opportunity to make real changes to the experience of all haemochromatosis patients. Publishing the Patient Survey Report 2017 and running a successful, award winning, Venesection Study Day was only possible with the contributions of our members.

We are much stronger as a patient organisation if everyone gets behind us.

Our work to improve the system is much more effective when the organisation represents a large number of patients. Our aspirations are high; we want “GH” to be as recognised among the public as “MS” for example. We want to significantly reduce the average age at which people are diagnosed. We want patients to receive high quality care and be well informed and looked after in all areas of the UK.

To make things happen we need you behind us.

We’ve made it even quicker and easier to become part of Haemochromatosis UK. Please visit the membership page here and join online. Membership is just £24 a year (£18 concessions). That’s equivalent to just £2 a month and includes a free copy of our excellent publication The Haemochromatosis Handbook, a welcome pack of other information, and our magazine three times a year.

Please click through and join us now.