Raising awareness with Endocrinologists

Earlier this month, we travelled to Brighton to attend the Society for Endocrinology’s (SfE) annual conference BES. It was a privilege to be invited to represent HUK for the first time at this conference, strengthening collaborations with other charity organisations and across a global community of Endocrinologists. HUK, is now also an approved group member of the SfE Patient Support (Read more…)

Our new offices

Haemochromatosis UK has today moved from its previous premises in Rugby to a new office building in Spalding, Lincolnshire. The move was precipitated by our landlord in Rugby serving notice to leave the existing premises unexpectedly at the beginning of October. Following an extensive search for alternative office accommodation, the migration from the Rugby premises has been completed this week, (Read more…)

Raising Awareness at the RCGP National Conference

On the 24th-25thth October Neil, Sam and Howard attended the RCGP Conference. The Royal College of General Practitioners is a network of more than 53,000 family doctors working to improve care for patients. They act as a voice for GPs on education, training, research and clinical standards. The first day of the conference saw over 2000 GPs and the HUK stand (Read more…)

HUK Strengthens Role Within Genetic Alliance UK

In a move which strengthens our role in genetic medicine policy making, the members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month. The Genetic Alliance is a national charity working across the UK to improve the lives of patients and families affected by genetic, rare and undiagnosed (Read more…)

An Irish road-trip

In late September, HUK’s CEO Neil McClements set out on a road-trip across the island of Ireland to listen to community views on genetic haemochromatosis. GH is very prevalent across Ireland. It’s estimated that in the Republic, one in five people are a carrier and one in 83 people are directly affected. Across the border, in Northern Ireland, recent UK (Read more…)

Your Patient Will See You Now

We’re delighted to announce that Haemochromatosis UK has received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising. This grant will help us to develop our clinician education programme and help raise awareness of the condition in the general public. Your Patient Will See You Now is a people-led project to empower 60-100 (Read more…)

HUK Secure National Lottery Funding For Northern Ireland Support Group

Haemochromatosis is prevalent in Northern Ireland. Recent UK Biobank studies suggest that as many as 1 in 113 people are affected by genetic haemochromatosis. It is common in people from Celtic backgrounds, particularly of Irish understood ancestry (1 in 5 people carry the gene). Patients with GH or Iron Overload are found all across Northern Ireland. The project has been (Read more…)

HUK Success at Best Practice Show – Raising Awareness with Clinicians

On the 9th -10th October our Education Programme Manager Sam Hobbs and HUK CEO Neil McClements attended the Best Practice Show at Birmingham’s NEC, the UK’s national event for general practice.  With over 6,000 senior decision-makers and key influencers working within Primary and Secondary Care. This gave us the opportunity to get face to face with those responsible for shaping the (Read more…)